Author(s): Carvalho, Carmen ; Vale, Ana ; Magalhães, Susana
Date: 2020
Persistent ID: http://hdl.handle.net/10437/13732
Origin: ReCiL - Repositório Científico Lusófona
Subject(s): MEDICINA; COMUNICAÇÃO; TOMADA DE DECISÃO; CUIDADOS INTENSIVOS NEONATAIS; CUIDADOS INTENSIVOS; MEDICINE; COMMUNICATION; DECISION MAKING; NEONATAL INTENSIVE CARE; INTENSIVE CARE
Objective: This paper aims to analyse parents’ and health professionals’ discourse, regarding four main areas: (1) the experience of care; (2) communication among all stakeholders; (3) ethical issues; (4) and ethical decision-making. Methodology: The authors collected 62 narratives from health professionals and parents whose newborns have been hospitalized for at least 15 days in the neonatal intensive care unit (NICU). We carried out a qualitative content analysis with the support of NVivo software version 12 Pro. Results: The feelings/emotions are present in a high percentage of narratives (mostly negative ones). Parents´ learning emphasizes coping strategies. Most narratives focus on communicational aspects. Decision-making is referred to in almost half of the narratives. The ethical issues and questions mentioned are mainly related to decision-making. Conclusion: The present study emphasizes narrative relevance in the alignment of parents´ and health professionals´ perspectives to promote therapeutic relationships.
