Haemophilia A: Health and Economic Burden of a Rare Disease in Portugal

• Author(s): Café, A ; Carvalho, M ; Crato, M ; Faria, M ; Kjollerstrom, P ; Oliveira, C ; Pinto, PR ; Salvado, R ; Dos Santos, AA ; Silva, C
• Date: 2019
• Persistent ID: http://hdl.handle.net/10400.17/3701
• Origin: Repositório do Centro Hospitalar de Lisboa Central, EPE
• Subject(s): Adolescent; Child; Child, Preschool; Female; Health Care Costs; Hemophilia A; Humans; Infant; Infant, Newborn; Male; Portugal; Quality of Life; Quality-Adjusted Life Years; Rare Diseases; Surveys and Questionnaires; HDE HEM PED
• Document Type: Journal article
• Language: English
• Contributor(s): Repositório da Unidade Local de Saúde São José

Description

Haemophilia A is a hereditary bleeding disorder, which has been considered rare and chronic. The burden of this disease in Portugal remains unknown. The aim of this study was to estimate the annualized cost and health burden of haemophilia A in Portugal.