Author(s):
Seys, S. F. ; Bousquet, J. ; Bachert, C. ; Fokkens, W. J. ; Agache, I. ; Bernal-Sprekelsen, M. ; Callebaut, I. ; Cardel, L. O. ; Carrie, S. ; Castelnuovo, P. ; Cathcart, R. ; Constantinidis, J. ; Cools, L. ; Cornet, M. ; Clement, G. ; Sousa, João Carlos ; Cox, T. ; Doulaptsi, M. ; Gevaert, P. ; Hopkins, C. ; Hox, V. ; Hummel, T. ; Hosemann, W. ; Jacobs, R. ; Jorissen, M. ; Landis, B. N. ; Leunig, A. ; Lund, V. J. ; Mullol, J. ; Onerci, M. ; Palkonen, S. ; Proano, I. ; Prokopakis, E. ; Ryan, D. ; Riechelmann, H. ; Saevels, J. ; Segboer, C. ; Speleman, K. ; Steinsvik, E. A. ; Surda, P. ; Tomazic, P. V. ; Vanderveken, O. ; Van Gerven, L. ; Van Zele, T. ; Verhaeghe, B. ; Vierstraete, K. ; Vlaminck, S. ; Wilkinson, J. ; Williams, S. ; Pugin, B. ; Hellings, P. W.
Date: 2018
Persistent ID: https://hdl.handle.net/1822/58038
Origin: RepositóriUM - Universidade do Minho
Subject(s): Chronic Disease; Humans; Quality of Life; Rhinitis; Sinusitis; Mobile Applications; Patient Participation; Self Care; chronic airway disease; rhinosinusitis; mobile application; education; self-management
Description
Mobile health technology is emerging to take a prominent position in the management of chronic diseases. These technologies aim at enhancing patient empowerment via education and self-management. To date, of all the different apps available for patients with sinus disease, none were developed by medical experts dealing with chronic rhinosinusitis (CRS). The European Forum for Research and Education in Allergy and Airway diseases (EUFOREA) has undertaken a multi-stakeholder approach for designing, developing and implementing a tool to support CRS patients in monitoring their symptoms and to provide patients with a digital support platform containing reliable medical information about their disease and treatment options. mySinusitisCoach has been developed by medical experts dealing with CRS in close collaboration with patients, primary care physicians and community pharmacists, meeting the needs of both patients and health care providers. From a research perspective, the generation of real life data will help to validate clinical studies, patient stratification and improve understanding of the socio-economic impact of CRS, thereby paving the way for better treatment strategies.
