4 documents found, page 1 of 1
Optimizing advance care planning in dementia: recommendations from a 33-country...
European Association for Palliative Care (EAPC); Steen, Jenny T. van der; Block, Lieve Van den; Nakanishi, Miharu; Dening, Karen HarrisonContext: Advance care planning (ACP) is relevant yet challenging with cognitive decline. Objective: To provide evidence and consensus-based clinical recommendations for how to conduct ACP in dementia. Methods: International Delphi study conducted by the European Association for Palliative Care ‘ACP in dementia’ taskforce with four online surveys (September 2021-June 2022). A panel of 107 experts from 33 countri...
Future policy and research for advance care planning in dementia: consensus rec...
Nakanishi, Miharu; Pereira, Sandra Martins; Van den Block, Lieve; Parker, Deborah; Harrison-Dening, Karen; Di Giulio, Paola; in der Schmitten, JürgenAdvance care planning (ACP) is growing in importance in the global agenda for dementia care. The European Association for Palliative Care Taskforce (EAPC) on ACP in Dementia aimed to provide recommendations for policy initiatives and future research. We conducted a four-round Delphi study with a 33-country panel of 107 experts between September 2021 and June 2022 and approval by the EAPC Board. Consensus was ac...
Consensus definition of advance care planning in dementia: a 33-country Delphi ...
European Association for Palliative Care; Steen, Jenny T. van der; Nakanishi, Miharu; Van den Block, Lieve; Di Giulio, Paola; Gonella, SilviaINTRODUCTION: Existing advance care planning (ACP) definitional frameworks apply to individuals with decision-making capacity. We aimed to conceptualize ACP for dementia in terms of its definition and issues that deserve particular attention. METHODS: Delphi study with phases: (A) adaptation of a generic ACP framework by a task force of the European Association for Palliative Care (EAPC); (B) four online survey...
Cross-cultural conceptualization of a good end of life with dementia: a qualita...
Nishimura, Mayumi; Dening, Karen Harrison; Sampson, Elizabeth L.; de Oliveira Vidal, Edison Iglesias; Abreu, Wilson; Kaasalainen, SharonBackground: Research on the nature of a “good death” has mostly focused on dying with cancer and other life-limiting diseases, but less so on dementia. Conceptualizing common cross-cultural themes regarding a good end of life in dementia will enable developing international care models. Methods: We combined published qualitative studies about end of life with dementia, focus group and individual interviews with...