9 documents found, page 1 of 1
EULAR points to consider for patient education in physical activity and self-ma...
Courel-Ibáñez, Javier; Prieto-Moreno, Rafael; Briones-Vozmediano, Erica; Ariza-Vega, Patrocinio; Angevare, Saskya; Anton, Jordi; Bini, IlariaObjectives A EULAR task force was convened to develop points to consider (PtC) for patient education in physical activity and self-management of pain in young people with juvenile-onset rheumatic and musculoskeletal diseases during transitional care. Methods A task force of 26 people from 10 European countries followed the EULAR Standardised Operating Procedures to establish overarching principles (OAPs) and Pt...
EULAR points to consider for patient education in physical activity and self-ma...
Courel-Ibáñez, Javier; Prieto Moreno, Rafael; Briones-Vozmediano, Erica; Ariza-Vega, Patrocinio; Angevare, Saskya; Anton, Jordi; Bini, Ilaria© European Alliance of Associations for Rheumatology, EULAR 2024. Re-use permitted under CC BY-NC-ND. No commercial re-use. No derivatives. See rights and permissions. Published by BMJ on behalf of EULAR.; OBJECTIVES: A EULAR task force was convened to develop points to consider (PtC) for patient education in physical activity and self-management of pain in young people with juvenile-onset rheumatic and musculo...
Consensus-based recommendations for the management of juvenile systemic sclerosis
Foeldvari, Ivan; Culpo, Roberta; Sperotto, Francesca; Anton, Jordi; Avcin, Tadej; Baildam, Eileen; Boros, Christina; Chaitow, Jeffrey; Constantin, TamasMade available in DSpace on 2022-04-29T08:29:27Z (GMT). No. of bitstreams: 0 Previous issue date: 2021-04-01; Juvenile systemic sclerosis (JSSc) is a rare disease of childhood and currently no international consensus exists with regard to its assessment and treatment. This SHARE (Single Hub and Access point for paediatric Rheumatology in Europe) initiative, based on expert opinion informed by the best available...
Are Patients with Overlap Features Different from Patients without? Results fro...
Foeldvari, Ivan; Klotsche, Jens; Kasapcopur, Ozgur; Adrovic, Amra; Stanevicha, Valda; Terreri, Maria Teresa [UNIFESP]; Alexeeva, EkaterinaHamburg Ctr Pediat & Adolescent Rheumatol, Hamburg, Germany; German Rheumatism Res Ctr, Epidemiol Unit, Berlin, Germany; Istanbul Univ, Cerrahpasa Med Sch, Dept Pediat Rheumatol, Pediat Rheumatol, Istanbul, Turkey; Istanbul Univ, Cerrahpasa Med Sch, Dept Pediat Rheumatol, Istanbul, Turkey; Riga Stradins Univ, Pediat cathedra, Riga, Latvia; Fed Univ Sao Paulo UNIFESP, Pediat Rheumatol Unit, Sao Paulo, Brazil; Ch...
Performance of Juvenile Scleroderma Classification Criteria for Juvenile System...
Klotsche, Jens; Foeldvari, Ivan; Kasapcopur, Ozgur; Smith, Vanessa; Sztajnbok, Flavio; Katsicas, Maria M.; Cimaz, Rolando; Janarthanan, MaheshGerman Rheumatism Res Ctr, Epidemiol Unit, Berlin, Germany; Hamburg Ctr Pediat & Adolescent Rheumatol, Hamburg, Germany; Istanbul Univ, Cerrahpasa Med Sch, Dept Pediat Rheumatol, Pediat Rheumatol, Istanbul, Turkey; Univ Ghent, Fac Internal Med, Ghent, Belgium; Univ Fed Rio de Janeiro, Rio De Janeiro, Brazil; Hosp Pediat Prof Dr JP Garrahan, Serv Immunol & Rheumatol, Buenos Aires, DF, Argentina; Osped Pediat Ann...
Proposal for a definition for response to treatment, inactive disease and damag...
Foeldvari, Ivan; Klotsche, Jens; Simonini, Gabriele; Edelsten, Clive; Angeles-Han, Sheila T; Bangsgaard, Regitze; de Boer, Joke; Brumm, GabrieleBackground: JIA-associated uveitis (JIAU) is a serious, sight-threatening disease with significant long-term complications and risk of blindness, even with improved contemporary treatments. The MIWGUC was set up in order to propose specific JIAU activity and response items and to validate their applicability for clinical outcome studies. Methods: The group consists of 8 paediatric rheumatologists and 7 ophthalm...
Consensus-based recommendations for the management of juvenile localised sclero...
Zulian, Francesco; Culpo, Roberta; Sperotto, Francesca; Anton, Jordi; Avcin, Tadej; Baildam, Eileen M; Boros, Christina; Chaitow, JeffreyMade available in DSpace on 2019-10-06T16:19:22Z (GMT). No. of bitstreams: 0 Previous issue date: 2019-08-01; In 2012, a European initiative called Single Hub and Access point for paediatric Rheumatology in Europe (SHARE) was launched to optimise and disseminate diagnostic and management regimens in Europe for children and young adults with rheumatic diseases. Juvenile localised scleroderma (JLS) is a rare dise...
Phenotypic variability and disparities in treatment and outcomes of childhood a...
Consolaro, Alessandro; Giancane, Gabriella; Alongi, Alessandra; van Dijkhuizen, Evert Hendrik Pieter; Aggarwal, Amita; Al-Mayouf, Sulaiman M.Made available in DSpace on 2019-10-05T16:54:20Z (GMT). No. of bitstreams: 0 Previous issue date: 2019-04-01; IRCCS Istituto Giannina Gaslini; Background To our knowledge, the characteristics and burden of childhood arthritis have never been studied on a worldwide basis. We aimed to investigate, with a cross-sectional study, the prevalence of disease categories, treatment methods, and disease status in patients...
Health related quality of life measure in systemic pediatric rheumatic diseases...
Moorthy, Lakshmi Nandini; Roy, Elizabeth; Kurra, Vamsi; Peterson, Margaret G. E.; Hassett, Afton L.; Lehman, Thomas J. A.; Scot, ChristiaanMade available in DSpace on 2015-03-18T15:55:50Z (GMT). No. of bitstreams: 0 Previous issue date: 2014-11-25Bitstream added on 2015-03-18T16:28:34Z : No. of bitstreams: 1 WOS000346520700001.pdf: 205186 bytes, checksum: c29e39dcb1d87ab0b78ebf2affc7a14b (MD5); Background: Rheumatic diseases in children are associated with significant morbidity and poor health-related quality of life (HRQOL). There is no health-re...