O presente relatório foi elaborado no âmbito da Unidade Curricular de Estágio decorrida ao longo do segundo semestre do terceiro ano da Licenciatura de Animação Sociocultural. Este mesmo relatório tem por objetivo explicitar as diversas atividades e aprendizagens decorridas ao longo do período de estágio, cujo objetivo principal é colocar em prática as metodologias e técnicas aprendidas ao longo da licenciatura...
Introduction: Moral distress occurs when one knows the morally correct action to take but is constrained from taking that action. The aims of this study were to translate into European Portuguese and culturally adapt the “Measure of Moral Distress – Healthcare Professionals” questionnaire to the context of the Portuguese healthcare system and to explore the frequency and intensity of moral distress occurring am...
Introduction: Evidence shows most patients are not recognised by their attending healthcare professionals as having palliative needs. This feasibility study aimed to aid healthcare professionals identify hospital patients with palliative needs.Material and Methods: Mixed-methods, cross-sectional, observational study. The patient inclusion criteria comprised: age over 18 years old, being mentally capable to give...
Background: To culturally adapt and validate the Integrated Palliative care Outcome Scale to European Portuguese. Methods: Multi-centred observational study with 2 assessment points. Data were collected in nine centres using consecutive sampling. All patients were screened for eligibility. Inclusion criteria: ≥18 years, mentally fit to give consent, diagnosed with an incurable, potentially life-threatening illn...
Dignity Therapy (DT) is a brief, individualized intervention, which provides terminally ill patients with an opportunity to convey memories and essential disclosures that culminate in a legacy document. DT often broaches psychosocial and existential issues, hence bolstering a sense of meaning and purpose (Chochinov et al., 2005). During DT, trained therapists guide a psychotherapeutic session based on a framewo...
Introduction: The concept of total suffering is well known to palliative care, and it indicates that there are several complex and correlated factors, which contribute to a dynamic and unique experience of one's illness trajectory. Research on terminally ill patients' will to live (WtL) has revealed important insights on its fluctuations over time and its correlated factors. We report an N-of-1 case study with ...
Background: Modern medicine can be impersonal and routinized, paying insufficient attention to issues of personhood. The Patient Dignity Question (PDQ) and This Is ME (TIME) Questionnaire are clinical tools developed with the aim of probing for personhood, reinforcing dignity and promoting health care attitudes based on looking at people for who they are and not defining them solely based on their medical condi...