2 documents found, page 1 of 1
The interface of science: the case for a broader definition of research management
Agostinho, Marta; Alves, Catarina Moniz; Aresta, Sandra; Borrego, Filipa; Borlido-Santos, Júlio; Cortez, João; Costa, Tatiana Lima; Lopes, José AntónioThis paper results from on-going reflection within the practitioners group Plataforma de Interface à Ciência (Platform of Professionals at the Interface of Science), an informal nationwide network in Portugal that brings together professionals involved in a large scope of activities related to research management, knowledge transfer and science communication. Due to the wide scope of functions and profiles of t...
The importance of the general practitioner as an information source for patient...
Teixeira, Emerência; Borlido-Santos, Júlio; Brissot, Pierre; Butzeck, Barbara; Courtois, Françoise; Evans, Robert W.; Fernau, JanetObjective To explore hereditary haemochromatosis (HH) patients’ perspectives on genetic information, namely the types of sources used, preferred or trusted. Methods A survey online was conducted by the European Federation of Associations of Patients with Haemochromatosis (EFAPH) and applied to members of nine National Associations. Results From a total of 1019 validated questionnaires, 895 respondents had perfo...