18 documents found, page 1 of 2

Evidence of validity of internal structure of the Functional Assessment of Chro...

This study explored the evidence of validity of internal structure of the 12-item Functional Assessment of Chronic Illness Therapy—Spiritual Wellbeing Scale (FACIT-Sp-12) in Brazilian adolescents with chronic health conditions. The study involved 301 Brazilian adolescents with cancer, type 1 diabetes mellitus, or cystic fibrosis. Exploratory Factor Analysis (EFA), Confirmatory Factor Analysis (CFA), and Item Re...

DISABKIDS® en Brasil: avances y perspectivas futuras en la producción del conoc...

Objetivo: mapear la producción científica que se ocupa de las etapas del proceso metodológico para el uso de los instrumentos y/o formularios adaptados DISABKIDS® a Brasil. Método: scoping review, búsqueda realizada en 10 bases de datos electrónicas, en el Google Scholar y por intermedio de consulta a investigadores, sin restricción de período o idioma. Resultados: el mapeo identificó 90 estudios científicos qu...

Psychometric properties of the quality of life in short statured youth (QoLISSY...

Background: The Quality of Life of Short Stature Youth (QoLISSY) questionnaire is a patient- and parent-reported outcome measure assessing health-related quality of life (HRQOL) in short stature youth. This study evaluates the psychometric properties of the QoLISSY questionnaire within a German prospective trial of short statured children treated with human growth hormone (hGH). Method: The instrument was admin...

Measuring spiritual well‑being in Brazilian adolescents with chronic illness us...

Spiritual well-being is a major issue in health care, but instruments for measuring this construct in adolescents are lacking. This study adapted the 12-item Functional Assessment of Chronic Illness Therapy-Spiritual Well-being Scale (FACIT-Sp-12) for use with Brazilian adolescents with chronic diseases and developed a parental observer-rated version, using an expert panel, back-translation, and cognitive inter...

Children's psychosocial functioning and parents' quality of life in paediatric ...

Establishing priorities for psychological interventions in pediatric settings: ...

Associations between psychological problems and quality of life in pediatric sh...

Short stature has been associated with psychosocial impairments, but whether treatments and achieved height impact on health-related quality of life (HrQoL) and psychological functioning of children/adolescents is still controversial. This study aimed to examine the effects of height deviation and treatment status on psychosocial adaptation outcomes and to identify clinical and psychosocial determinants of inte...

Explaining parent-child (dis)agreement in generic and short stature-specific he...

Background: In the context of health-related quality of life (HrQoL) assessment in pediatric short stature, the present study aimed to examine the levels of agreement/disagreement between parents’ and children’s reports of generic and condition-specific HrQoL, and to identify socio-demographic, clinical and psychosocial variables associated with the extent and direction of parent-child discrepancies. Methods: T...

Why the (dis)agreement? Family context and child-parent perspectives on health-...

Introduction. Children’s health-related quality of life (HrQoL) and psychological problems are important outcomes to consider in clinical decision making in pediatric asthma. However, children’s and parents’ reports often differ. The present study aimed to examine the levels of agreement/disagreement between children’s and parents’ reports of HrQoL and psychological problems and to identify socio-demographic, c...

The Portuguese DISABKIDS Asthma Module: A global index of asthma-specific quali...

Introduction. The KIDSCREEN and DISABKIDS questionnaires constitute a modular system for assessing the health-related quality of life (HrQoL) of children/adolescents. Objective: This study was aimed at examining the factorial structure of the Portuguese patient- and parent-reported versions of the DISABKIDS-Asthma Module (AsM) and its invariance across age groups and informants, as well as to examine their reli...