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Mapping the diagnostic odyssey of congenital disorders of glycosylation (CDG)
Granjo, Pedro; Pascoal, Carlota; Gallego, Diana; Francisco, Rita; Jaeken, Jaak; Moors, Tristen; Edmondson, Andrew C.; Kantautas, Kristin A.We would like to express our gratitude to the all CDG patient organizations and professionals who actively partnered with us in conducting this community-centered research led by the CDG & Allies \u2013 Patient Advocacy and International Research Network. We would also like to acknowledge the support of MetaBERN and FCDGC, as well as other CDG patient organizations worldwide, namely CDG Care, CDG Mexico, and Si...
Date: 2024
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Origin: Repositório Institucional da UNL