2 documents found, page 1 of 1
Availability of information on young onset dementia for patients and carers in ...
Jones, Bridget; Gage, Heather; Bakker, Christian; Bárrios, Helena; Boucault, Sarah; Mayer, Johannes; Metcalfe, Anna; Millenaar, Joany; Parker, WendyMethods: Search of websites of organisations with potential interest in dementia. Narrative synthesis and comparative analysis. Results: 21 sources of information were identified (Netherlands 6, England 6, France 3, Germany 2, Portugal 2, Sweden 2); 11 were from voluntary sector organisations. Sources dedicated to YOD were limited (4 websites, 4 books); all other YOD information was sub-entries in generic demen...
RHAPSODY – Internet-based support for caregivers of people with young onset dem...
Kurz, Alexander; Bakker, Christian; Böhm, Markus; Diehl-Schmid, Janine; Dubois, Bruno; Ferreira, Catarina; Gage, Heather; Graff, CarolineBackground: Young Onset Dementia (YOD), defined by first symptoms of cognitive or behavioral decline occurring before the age of 65 years, is relatively rare compared to dementia of later onset, but it is associated with diagnostic difficulty and heavy burden on affected individuals and their informal carers. Existing health and social care structures rarely meet the needs of YOD patients. Internet-based interv...