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Increased interaction and procedural flexibility favoured participation: Study ...

Marques, SC; Doetsch, JN; Teixeira, R; Abate, G; Brødsgaard, A; Brubakk, AM; Colombo, G; Cuttini, M; Evensen, KAI; Hennissen, V; Indredavik, MS

Objective: To understand participation and attrition phenomena variability in European cohorts of individuals born preterm through in-depth exploration of the interplay of situational elements involved. Methods: Multi-situated qualitative design, using focus groups, semi-structured interviews and collaborative visual methodology with a purposive sample of adults born preterm, parents and professionals (n = 124)...


Understanding participation in European cohort studies of preterm children: the...

Marques, SCS; Doetsch, J; Abate, G; Brødsgaard, A; Colombo, G; Cuttini, M; Pedersen, P; Barros, H; RECAP Preterm-WP6 QS Work Group

Background Retention of participants in cohort studies is a major challenge. A better understanding of all elements involved in participation and attrition phenomena in particular settings is needed to develop effective retention strategies. The study aimed to achieve an in-depth understanding of participant retention in longitudinal cohorts focusing on participants’ and researcher’s perspectives, across three ...


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