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Variation in follow-up for children born very preterm in Europe
Seppänen, AV; Barros, H; Draper, ES; Petrou, S; Andronis, L; Kim, S; Maier, RF; Pedersen, P; Gadzinowski, J; Pierrat, V; Sarrechia, I; Lebeer, JBackground Children born very preterm (<32 weeks of gestation) face high risks of neurodevelopmental and health difficulties compared with children born at term. Follow-up after discharge from the neonatal intensive care unit is essential to ensure early detection and intervention, but data on policy approaches are sparse. Methods We investigated the characteristics of follow-up policy and programmes in 11 Euro...
Health-related quality of life at 5 years of age for children born very preterm...
Kim, SW; Tian, X; Andronis, L; Maier, RF; Varendi, H; Seppänen, A-V; Siljehav, V; Draper, ES; Zeitlin, J; Petrou, S; Seppänen, AV; El Rafei, RBackground: This study aimed to investigate the health-related quality of life (HRQoL) at 5 years of age of European children born very preterm across multi-dimensional outcomes by presence and severity of congenital anomalies. Methods: The study used data from a European cohort of children born very preterm (<32 weeks of gestation) and followed up to 5 years of age (N = 3493). Multilevel Ordinary Least Squares...
Developmental motor problems and health-related quality of life in 5-year-old c...
Aubert, AM; Costa, R; Johnson, S; Ådén, U; Pierrat, V; Cuttini, M; Männamaa, M; Sarrechia, I; Lebeer, J; Van Heijst, AF; Maier, RF; Sentenac, MAim To measure the association between cerebral palsy (CP) and non-CP-related movement difficulties and health-related quality of life (HRQoL) among 5-year-old children born extremely preterm (<28 weeks gestational age). Method We included 5-year-old children from a multi-country, population-based cohort of children born extremely preterm in 2011 to 2012 in 11 European countries (n = 1021). Children without CP ...
Prediction of movement difficulties at 5 years from parent report at 2 years in...
Costa, R; Aubert, AM; Seppänen, AV; Ådén, U; Sarrechia, I; Zemlin, M; Cuttini, M; Männamaa, M; Pierrat, V; van Heijst, A; Barros, H; Zeitlin, JAimTo assess the predictive validity of parent-reported gross motor impairment (GMI) at age 2 years to detect significant movement difficulties at age 5 years in children born extremely preterm. MethodData were from 556 children (270 males, 286 females) born at less than 28 weeks' gestation in 2011 to 2012 in 10 European countries. Parent report of moderate/severe GMI was defined as walking unsteadily or unable...
Risk factors for cerebral palsy and movement difficulties in 5-year-old childre...
Aubert, AM; Costa, R; Johnson, S; Aden, U; Cuttini, M; Koopman-Esseboom, C; Lebeer, J; Varendi, H; Zemlin, M; Pierrat, V; Zeitlin, JBackgroundMotor impairment is common after extremely preterm (EPT, <28 weeks' gestational age (GA)) birth, with cerebral palsy (CP) affecting about 10% of children and non-CP movement difficulties (MD) up to 50%. This study investigated the sociodemographic, perinatal and neonatal risk factors for CP and non-CP MD.MethodsData come from a European population-based cohort of children born EPT in 2011-2012 in 11 c...
Follow-up after very preterm birth in Europe
Seppänen, AV; Draper, ES; Petrou, S; Barros, H; Andronis, L; Kim, SW; Maier, RF; Pedersen, P; Gadzinowski, J; Lebeer, J; Ådén, U; Toome, LFollow-up programmes aim to detect neurodevelopmental and health problems and enable early interventions for children born very preterm (<32 weeks of gestational age (GA)). Although the importance of postdischarge follow-up is widely acknowledged, recommendations differ regarding eligibility criteria, frequency, duration and content, especially for follow-up beyond early childhood.1–3 We used data from a Europe...
Motor-related health care for 5-year-old children born extremely preterm with m...
Costa, R; Aubert, AM; Seppänen, A-V; Ådén, U; Sarrechia, L; Zemlin, M; Cuttini, M; Männamaa, M; Pierrat, V; van Heijst, A; Barros, H; Johnson, SAim: To (1) determine the proportion of 5-year-old children born extremely preterm (EPT) with movement difficulties including cerebral palsy (CP) and the proportion of these children receiving motor-related health care (MRHC), and (2) describe factors associated with receiving MRHC. Method: Children born before 28 weeks’ gestation in 2011 to 2012 in 11 European countries were assessed with the Movement Assessme...
Movement Difficulties at Age Five Among Extremely Preterm Infants
Aubert, AM; Costa, R; Ådén, U; Cuttini, M; Männamaa, M; Pierrat, V; Sarrechia, I; van Heijst, AF; Zemlin, M; Johnson, S; Zeitlin, JBACKGROUND AND OBJECTIVES: Children born extremely preterm (EPT), <28 weeks' gestational age, face higher risks of movement difficulties than their term-born peers. Studies report varying prevalence estimates and prognostic factors identifying children who could benefit from early intervention are inconsistent. This study investigated the prevalence of movement difficulties in children born EPT and associated r...
Variation in very preterm extrauterine growth in a European multicountry cohort
El Rafei, R; Jarreau, PH; Norman, M; Maier, RF; Barros, H; Reempts, PV; Pedersen, P; Cuttini, M; Zeitlin, J; EPICE Research GroupObjective Extrauterine growth restriction (EUGR) among very preterm infants is related to poor neurodevelopment, but lack of consensus on EUGR measurement constrains international research. Our aim was to compare EUGR prevalence in a European very preterm cohort using commonly used measures. Design Population-based observational study. Setting 19 regions in 11 European countries. Patients 6792 very preterm infa...
Increased interaction and procedural flexibility favoured participation: Study ...
Marques, SC; Doetsch, JN; Teixeira, R; Abate, G; Brødsgaard, A; Brubakk, AM; Colombo, G; Cuttini, M; Evensen, KAI; Hennissen, V; Indredavik, MSObjective: To understand participation and attrition phenomena variability in European cohorts of individuals born preterm through in-depth exploration of the interplay of situational elements involved. Methods: Multi-situated qualitative design, using focus groups, semi-structured interviews and collaborative visual methodology with a purposive sample of adults born preterm, parents and professionals (n = 124)...