2 documents found, page 1 of 1
PH CARE COVID survey: an international patient survey on the care for pulmonary...
Godinas, Laurent; Iyer, Keerthana; Meszaros, Gergely; Quarck, Rozenn; Escribano-Subias, Pilar; Vonk Noordegraaf, Anton; Jansa, Pavel; D’Alto, MicheleBackground: During the COVID-19 pandemic, most of the health care systems suspended their non-urgent activities. This included the cancellation of consultations for patients with rare diseases, such as severe pulmonary hypertension (PH), resulting in potential medication shortage and loss of follow-up. Thus, the aim of the study was to evaluate PH patient health status evolution, access to health care and menta...
Severe Pulmonary Hypertension Management Across Europe (PHAROS): an ERS Clinica...
Sitbon, Olivier; Reis, Abilio; Humbert, Marc; Vonk Noordegraaf, Anton; Delcroix, MarionThe overall objective of the PHAROS CRC is to establish a platform for clinical research in pulmonary hypertension, in close collaboration with the ERN-Lung, able to coordinate future collaborative research in Europe https://bit.ly/2Rx2FTl