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Optimizing advance care planning in dementia: recommendations from a 33-country...

European Association for Palliative Care (EAPC); Steen, Jenny T. van der; Block, Lieve Van den; Nakanishi, Miharu; Dening, Karen Harrison

Context: Advance care planning (ACP) is relevant yet challenging with cognitive decline. Objective: To provide evidence and consensus-based clinical recommendations for how to conduct ACP in dementia. Methods: International Delphi study conducted by the European Association for Palliative Care ‘ACP in dementia’ taskforce with four online surveys (September 2021-June 2022). A panel of 107 experts from 33 countri...


Cross-cultural conceptualization of a good end of life with dementia: a qualita...

Nishimura, Mayumi; Dening, Karen Harrison; Sampson, Elizabeth L.; de Oliveira Vidal, Edison Iglesias; Abreu, Wilson; Kaasalainen, Sharon

Background: Research on the nature of a “good death” has mostly focused on dying with cancer and other life-limiting diseases, but less so on dementia. Conceptualizing common cross-cultural themes regarding a good end of life in dementia will enable developing international care models. Methods: We combined published qualitative studies about end of life with dementia, focus group and individual interviews with...


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