2 documents found, page 1 of 1
(In)visibility of children with special health needs and their families in prim...
Marcon,Sonia Silva; Dias,Beatriz Caroline; Neves,Eliane Tatsch; Marcheti,Maria Angelica; Lima,Regina Aparecida Garcia deABSTRACT Objectives: to discuss the (in)visibility of children with special healthcare needs and their families in the Primary Health Care scenario. Methods: experience report about the difficulties faced by researchers from different regions of Brazil to locate children with special healthcare needs in the scope of primary care. Results: the main reason for these children and their families to be “unknown” and...
Challenges of family caregivers of children with special needs of multiple, com...
Dias,Beatriz Caroline; Ichisato,Sueli MutsumiTsukuda; Marchetti,Maria Angelica; Neves,Eliane Tatsch; Higarashi,Ieda Harumi; Marcon,Sonia SilvaABSTRACT Objective: To describe the challenges of family caregivers of children with special needs of multiple, complex and continuing care at home. Methods: Qualitative study based on the theoretical framework of the Patient and Family-Centerd Care (PFCC). We interviewed eleven family caregivers from 13 children enrolled in a special school in the Brazilian city of Maringá (PR). The data were subject to conten...