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Interpretation of many-valuedness in quality-of-life instruments

Ribeiro, Luís Pedro; Eklund, Patrik; Gomes Alves Ferreira, Maria Augusta; Magalhães Ribeiro, Anabela de; Farinha, Maria Conceição; Paiva, Maria Adelaide

Assessment instruments for functioning in general and quality of life in particular often involve discrete scales with three, four, or five values, or Visual Analogue Scales (VAS) with a range 0–100. VAS scales often need to be downsized and discretized using intervals or clusters. Cutoff points for these intervals/clusters need to be carefully selected and justified. Our objective was to underline the importan...


Consistent trajectories of rhinitis control and treatment in 16,177 weeks: The ...

Sousa-Pinto, Bernardo; Schünemann, Holger J.; Sá-Sousa, Ana; Vieira, Rafael José; Amaral, Rita; Anto, Josep M.; Klimek, Ludger; Czarlewski, Wienczyslawa

Introduction: Data from mHealth apps can provide valuable information on rhinitis control and treatment patterns. However, in MASK-air ®, these data have only been analyzed cross-sectionally, without considering the changes of symptoms over time. We analyzed data from MASK-air ® longitudinally, clustering weeks according to reported rhinitis symptoms. Methods: We analyzed MASK-air ® data, assessing the weeks fo...


Validity, reliability, and responsiveness of daily monitoring visual analog sca...

Sousa-Pinto, Bernardo; Eklund, Patrik; Pfaar, Oliver; Klimek, Ludger; Zuberbier, Torsten; Czarlewski, Wienczyslawa; Bédard, Annabelle

Background: MASK‐air® is an app that supports allergic rhinitis patients in disease control. Users register daily allergy symptoms and their impact on activities using visual analog scales (VASs). We aimed to assess the concurrent validity, reliability, and responsiveness of these daily VASs. Methods: Daily monitoring VAS data were assessed in MASK‐air® users with allergic rhinitis. Concurrent validity was asse...


Rethinking palliative care in a public health context: addressing the needs of ...

Tziraki, Chariklia; Grimes, Corrina; Ventura, Filipa; O'Caoimh, Ronan; Santana, Silvina; Zavagli, Veronica; Varani, Silvia; Tramontano, Donatella


Rethinking palliative care in a public health context: addressing the needs of ...

Tziraki, Chariklia; Grimes, Corrina; Ventura, Filipa; O'Caoimh, Rónán; Santana, Silvina; Zavagli, Veronica; Varani, Silvia; Tramontano, Donatella

Non-communicable chronic diseases (NCCDs) are the main cause of morbidity and mortality globally. Demographic aging has resulted in older populations with more complex healthcare needs. This necessitates a multilevel rethinking of healthcare policies, health education and community support systems with digitalization of technologies playing a central role. The European Innovation Partnership on Active and Healt...


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