5 documents found, page 1 of 1
Systematic literature review informing the EULAR points to consider for patient...
Courel-Ibáñez, Javier; Prieto-Moreno, Rafael; Briones-Vozmediano, Erica; Ariza-Vega, Patrocinio; Angevare, Saskya; Anton, Jordi; Bini, IlariaObjectives: To synthesise existing evidence on transitional care programmes for young people with juvenile-onset rheumatic and musculoskeletal diseases (jRMDs), focusing on their structure and implementation, the qualitative experiences and perceptions of those involved, and the quantitative outcomes associated with these programmes. Together with additional information, these insights have informed the Europea...
EULAR points to consider for patient education in physical activity and self-ma...
Courel-Ibáñez, Javier; Prieto Moreno, Rafael; Briones-Vozmediano, Erica; Ariza-Vega, Patrocinio; Angevare, Saskya; Anton, Jordi; Bini, Ilaria© European Alliance of Associations for Rheumatology, EULAR 2024. Re-use permitted under CC BY-NC-ND. No commercial re-use. No derivatives. See rights and permissions. Published by BMJ on behalf of EULAR.; OBJECTIVES: A EULAR task force was convened to develop points to consider (PtC) for patient education in physical activity and self-management of pain in young people with juvenile-onset rheumatic and musculo...
EULAR points to consider for patient education in physical activity and self-ma...
Courel-Ibáñez, Javier; Prieto-Moreno, Rafael; Briones-Vozmediano, Erica; Ariza-Vega, Patrocinio; Angevare, Saskya; Anton, Jordi; Bini, IlariaObjectives A EULAR task force was convened to develop points to consider (PtC) for patient education in physical activity and self-management of pain in young people with juvenile-onset rheumatic and musculoskeletal diseases during transitional care. Methods A task force of 26 people from 10 European countries followed the EULAR Standardised Operating Procedures to establish overarching principles (OAPs) and Pt...
Proposal for a definition for response to treatment, inactive disease and damag...
Foeldvari, Ivan; Klotsche, Jens; Simonini, Gabriele; Edelsten, Clive; Angeles-Han, Sheila T; Bangsgaard, Regitze; de Boer, Joke; Brumm, GabrieleBackground: JIA-associated uveitis (JIAU) is a serious, sight-threatening disease with significant long-term complications and risk of blindness, even with improved contemporary treatments. The MIWGUC was set up in order to propose specific JIAU activity and response items and to validate their applicability for clinical outcome studies. Methods: The group consists of 8 paediatric rheumatologists and 7 ophthalm...
Phenotypic variability and disparities in treatment and outcomes of childhood a...
Consolaro, Alessandro; Giancane, Gabriella; Alongi, Alessandra; van Dijkhuizen, Evert Hendrik Pieter; Aggarwal, Amita; Al-Mayouf, Sulaiman M.Made available in DSpace on 2019-10-05T16:54:20Z (GMT). No. of bitstreams: 0 Previous issue date: 2019-04-01; IRCCS Istituto Giannina Gaslini; Background To our knowledge, the characteristics and burden of childhood arthritis have never been studied on a worldwide basis. We aimed to investigate, with a cross-sectional study, the prevalence of disease categories, treatment methods, and disease status in patients...