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The GAIN Registry — a New Prospective Study for Patients with Multi-organ Autoi...

Staus, P; Rusch, S; El-Helou, S; Müller, G; Krausz, M; Geisen, U; Caballero-Oteyza, A; Krüger, R; Bakhtiar, S; Lee-Kirsch, MA; Fasshauer, M; Baumann, U

Patient registries are a very important and essential tool for investigating rare diseases, as most physicians only see a limited number of cases during their career. Diseases of multi-organ autoimmunity and autoinflammation are especially challenging, as they are characterized by diverse clinical phenotypes and highly variable expressivity. The GAIN consortium (German multi-organ Auto Immunity Network) develop...

Date: 2023   |   Origin: Repositório do Centro Hospitalar de Lisboa Central, EPE
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