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Bioethical frameworks in end of life care decision-making

Pereira, Sandra Martins; Borges, Paulo J.; Hernández-Marrero, Pablo

This chapter provides an overview of how the medicalisation of dying and increasing access to high-technology interventions at the end of life have led to multiplying ethical challenges in decision-making in biomedical settings around the world. Bioethical frameworks and models exist to aid healthcare professionals and teams in navigating complex ethico-clinical decision-making processes. Five different framewo...


A bioethical perspective on the meanings behind a wish to hasten death: a meta-...

Borges, Paulo J.; Hernández-Marrero, Pablo; Pereira, Sandra Martins

Background: The expressions of a “wish to hasten death” or “wish to die” raise ethical concerns and challenges. These expressions are related to ethical principles intertwined within the field of medical ethics, particularly in end-of-life care. Although some reviews were conducted about this topic, none of them provides an in-depth analysis of the meanings behind the “wish to hasten death/die” based specifical...


Cultivating excellence in palliative care education and training: a network and...

Paal, Piret; Mason, Stephen; Larkin, Philip; Hökkä, Minna; Economos, Guillaume; Pawłowski, Leszek; Pereira, Sandra Martins; Hernández-Marrero, Pablo

Background: In this study, we employed a collaborative and participatory approach, underpinned by pragmatic methodology, to explore and elucidate the interconnections within the research network of the COllaboratively DEveloped culturallY Appropriate and inclusive Assessment tool for Palliative Care EDUcation the European Cooperation in Science and Technology Action. We demonstrate how the analysis of the publi...


What are the triggers for palliative care referral in burn intensive care units...

Ribeiro, André Filipe; Pereira, Sandra Martins; Nunes, Rui; Hernández-Marrero, Pablo

Background: Burns are a global public health problem, accounting for around 300,000 deaths annually. Burns have significant consequences for patients, families, healthcare teams and systems. Evidence suggests that the integration of palliative care in burn intensive care units improves patients’ comfort, decision-making processes, and family care. Research is needed on how to optimise palliative care referrals....


Enhancing ethical decision-making at the end-of-life: empowering conditions or ...

Hernández-Marrero, Pablo; Pereira, Sandra Martins

Background: Healthcare professionals are increasingly making end-of-life decisions (ELDs), which have become an integrated dimension of contemporary palliative and end-of-life care. ELDs are medical decisions made at the end of life that may have a potentially life-shortening effect. These situations are very often moments of high vulnerability with a profound impact on patients' ability to exercise their auton...


What do we know about experiencing the end-of-life in burn intensive care units...

Ribeiro, André Filipe; Pereira, Sandra Martins; Nunes, Rui; Hernández-Marrero, Pablo

Objectives: To review and synthetize the evidence on end-of-life in burn intensive care units about (i) the characteristics of end-of-life in burn intensive care units, (ii) the symptom control provided to burned patients facing dying and death in this context, and (iii) the concept, models and designs of the care provided. Methods: Systematically conducted scoping review, following Arksey and O'Malley's framew...


Methodological challenges when using co-design in health research: a systematic...

Pereira, Sandra Martins; Martin-Ferreres, Maria Luisa; Ribeiro, André Filipe; Hernández-Marrero, Pablo




Life after stroke: a systematic integrative systematic review of PROMs used in ...

Sarmento, Joana Teles; Hernández-Marrero, Pablo; Muñoz, Joan Bertran; Pereira, Sandra Martins


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