6 documents found, page 1 of 1
Co-creation of a self-management application for asthma: A citizen science prot...
Sá-Sousa,Ana; Almeida,Gisela; Bastos,Tiago Costa; Rosário,Andreia; Lopes,Filipa; Costa,Emília Dias; Reis,António Baía; Figueiredo,DanielaABSTRACT Digital health can effectively engage patients in the self-management of their asthma. Still, it will only reach its full potential when apps are aligned with patients’ needs and are integrated into clinical practice. We aim to test a framework for the involvement of patients/carers in all phases of developing and implementing an app for asthma. This protocol was co-designed with six asthma patients/ca...
PAAI - Interactive online self-learning programme for patients with asthma: Pro...
Jácome,Cristina; Fonseca,Nancy; Rodrigues,Tânia; Fernandes,Silvana; Costa,Emília Dias da; Amaral,Rita; Matos,Paula; Areia,Margarida; Dias,LilianaABSTRACT Patient and Public Involvement (PPI) in research should focus on the engagement of patients/carers in every stage of the research cycle. However, the inconsistent level of education and research experience may compromise this involvement and training and support are recommended. In Portugal, consistent training to empower patients in their health decisions, or to be involved in research is neither avai...
Controlo da doença alérgica em indivíduos sob tratamento com imunoterapia com a...
Pereira,Mariana; Pereira,Ana Margarida; Araújo,Luís Miguel; Castel-Branco,Maria Graça; Morete,Ana; Jácome,Cristina; Fonseca,João AlmeidaRESUMO Fundamento: Medir o controlo da doença alérgica é fundamental na avaliação dos resultados da imunoterapia com alergénios (ITA). Objetivo: Descrever o controlo da doença alérgica (asma, rinite, conjuntivite) em doentes sob ITA subcutânea (ITSC). Métodos: Estudo descritivo, incluindo todos os indivíduos com >12 anos sob ITSC entre 03/2017 e 06/2019 nas unidades de Imunoalergologia da CUF‑Porto que responde...
PASMA 20-30 - Painel online de doentes para monitorização do controlo da ASMA 2...
Sá-Sousa,Ana; Pereira,Ana M.; Marques,João G.; Neuparth,Nuno; Fonseca,João A.; Jácome,CristinaRESUMO Introdução: Desde o último Inquérito Nacional sobre Asma (2010), o conhecimento da doença, a sua classificação e as opções terapêuticas disponíveis mudaram significativamente. Por outro lado, a evolução das tecnologias de informação e comunicação potencia a utilização de novos métodos de recolha de dados e permite a disponibilização de ferramentas digitais para recolha de dados de forma continuada, nomea...
Identification of clusters of asthma control: A preliminary analysis of the Ins...
Jácome,Cristina; Amaral,Rita; Almeida,Rute; Pereira,Ana Margarida; Couto,Mariana; Araújo,Luís; Alves-Correia,Magna; Pereira,MarianaAims: To identify distinct asthma control clusters based on Control of Allergic Rhinitis and Asthma Test (CARAT) and to compare patients characteristics among these clusters. Methods: Adults and adolescents (≥13 years) with persistent asthma were recruited at 29 Portuguese hospital outpatient clinics, in the context of two observational studies of the INSPIRERS project. Demographic and clinical characteristics...
Anxiety and depression in Portuguese patients with chronic obstructive pulmonar...
Jácome,Cristina; Marques,Alda; Gabriel,Raquel; Cruz,Joana; Figueiredo,DanielaObjectives: To assess symptoms of anxiety and depression among Portuguese patients with chronic obstructive pulmonary disease (COPD) and associated predictive factors. Study design: A multicentre, cross-sectional study. Setting: Three primary care centres and one district hospital in the central region of Portugal. Participants: 302 Portuguese outpatients with COPD. Methods: Symptoms of anxiety and depression w...