Context: Advance care planning (ACP) is relevant yet challenging with cognitive decline. Objective: To provide evidence and consensus-based clinical recommendations for how to conduct ACP in dementia. Methods: International Delphi study conducted by the European Association for Palliative Care ‘ACP in dementia’ taskforce with four online surveys (September 2021-June 2022). A panel of 107 experts from 33 countri...
Background: In this study, we employed a collaborative and participatory approach, underpinned by pragmatic methodology, to explore and elucidate the interconnections within the research network of the COllaboratively DEveloped culturallY Appropriate and inclusive Assessment tool for Palliative Care EDUcation the European Cooperation in Science and Technology Action. We demonstrate how the analysis of the publi...
INTRODUCTION: Existing advance care planning (ACP) definitional frameworks apply to individuals with decision-making capacity. We aimed to conceptualize ACP for dementia in terms of its definition and issues that deserve particular attention. METHODS: Delphi study with phases: (A) adaptation of a generic ACP framework by a task force of the European Association for Palliative Care (EAPC); (B) four online survey...
Times of crisis are times of suffering and pain and opportunities for transformation. Beyond the current debate on measures to combat coronavirus disease 2019 (COVID-19), one must consider two consequences of the pandemic that can be opportunities to foster spiritual well-being (Stilos et al., 2021) and exercise hope in palliative care.
Background: Nurses are the largest regulated group of healthcare professionals involved in palliative care. In 2004, a taskforce of the European Association for Palliative Care (EAPC) launched the ‘Guide for development of palliative nurse education in Europe’ (hereinafter, the EAPC 2004 Guide). No systematic evaluation of its impact in the development of palliative care education was undertaken. Aims: To descr...
A Associação Europeia de Cuidados Paliativos (European Association for Palliative Care, EAPC) descreve as competências centrais que os profissionais da saúde e das ciências sociais envolvidos nos cuidados paliativos devem possuir, num guia orientador consensual elaborado por Claudia Gamondi, Philip Larkin e Sheila Payne