11 documents found, page 1 of 2
Variation in follow-up for children born very preterm in Europe
Seppänen, AV; Barros, H; Draper, ES; Petrou, S; Andronis, L; Kim, S; Maier, RF; Pedersen, P; Gadzinowski, J; Pierrat, V; Sarrechia, I; Lebeer, JBackground Children born very preterm (<32 weeks of gestation) face high risks of neurodevelopmental and health difficulties compared with children born at term. Follow-up after discharge from the neonatal intensive care unit is essential to ensure early detection and intervention, but data on policy approaches are sparse. Methods We investigated the characteristics of follow-up policy and programmes in 11 Euro...
Health-related quality of life at 5 years of age for children born very preterm...
Kim, SW; Tian, X; Andronis, L; Maier, RF; Varendi, H; Seppänen, A-V; Siljehav, V; Draper, ES; Zeitlin, J; Petrou, S; Seppänen, AV; El Rafei, RBackground: This study aimed to investigate the health-related quality of life (HRQoL) at 5 years of age of European children born very preterm across multi-dimensional outcomes by presence and severity of congenital anomalies. Methods: The study used data from a European cohort of children born very preterm (<32 weeks of gestation) and followed up to 5 years of age (N = 3493). Multilevel Ordinary Least Squares...
Developmental motor problems and health-related quality of life in 5-year-old c...
Aubert, AM; Costa, R; Johnson, S; Ådén, U; Pierrat, V; Cuttini, M; Männamaa, M; Sarrechia, I; Lebeer, J; Van Heijst, AF; Maier, RF; Sentenac, MAim To measure the association between cerebral palsy (CP) and non-CP-related movement difficulties and health-related quality of life (HRQoL) among 5-year-old children born extremely preterm (<28 weeks gestational age). Method We included 5-year-old children from a multi-country, population-based cohort of children born extremely preterm in 2011 to 2012 in 11 European countries (n = 1021). Children without CP ...
Risk factors for cerebral palsy and movement difficulties in 5-year-old childre...
Aubert, AM; Costa, R; Johnson, S; Aden, U; Cuttini, M; Koopman-Esseboom, C; Lebeer, J; Varendi, H; Zemlin, M; Pierrat, V; Zeitlin, JBackgroundMotor impairment is common after extremely preterm (EPT, <28 weeks' gestational age (GA)) birth, with cerebral palsy (CP) affecting about 10% of children and non-CP movement difficulties (MD) up to 50%. This study investigated the sociodemographic, perinatal and neonatal risk factors for CP and non-CP MD.MethodsData come from a European population-based cohort of children born EPT in 2011-2012 in 11 c...
Follow-up after very preterm birth in Europe
Seppänen, AV; Draper, ES; Petrou, S; Barros, H; Andronis, L; Kim, SW; Maier, RF; Pedersen, P; Gadzinowski, J; Lebeer, J; Ådén, U; Toome, LFollow-up programmes aim to detect neurodevelopmental and health problems and enable early interventions for children born very preterm (<32 weeks of gestational age (GA)). Although the importance of postdischarge follow-up is widely acknowledged, recommendations differ regarding eligibility criteria, frequency, duration and content, especially for follow-up beyond early childhood.1–3 We used data from a Europe...
Motor-related health care for 5-year-old children born extremely preterm with m...
Costa, R; Aubert, AM; Seppänen, A-V; Ådén, U; Sarrechia, L; Zemlin, M; Cuttini, M; Männamaa, M; Pierrat, V; van Heijst, A; Barros, H; Johnson, SAim: To (1) determine the proportion of 5-year-old children born extremely preterm (EPT) with movement difficulties including cerebral palsy (CP) and the proportion of these children receiving motor-related health care (MRHC), and (2) describe factors associated with receiving MRHC. Method: Children born before 28 weeks’ gestation in 2011 to 2012 in 11 European countries were assessed with the Movement Assessme...
Increased interaction and procedural flexibility favoured participation: Study ...
Marques, SC; Doetsch, JN; Teixeira, R; Abate, G; Brødsgaard, A; Brubakk, AM; Colombo, G; Cuttini, M; Evensen, KAI; Hennissen, V; Indredavik, MSObjective: To understand participation and attrition phenomena variability in European cohorts of individuals born preterm through in-depth exploration of the interplay of situational elements involved. Methods: Multi-situated qualitative design, using focus groups, semi-structured interviews and collaborative visual methodology with a purposive sample of adults born preterm, parents and professionals (n = 124)...
Maternal education and cognitive development in 15 European very-preterm birth ...
Sentenac, M; Benhammou, V; Aden, U; Ancel, PY; Bakker, LA; Bakoy, H; Barros, H; Baumann, N; Bilsteen, JF; Boerch, K; Croci, I; Cuttini, M; Draper, EBackground Studies are sparse and inconclusive about the association between maternal education and cognitive development among children born very preterm (VPT). Although this association is well established in the general population, questions remain about its magnitude among children born VPT whose risks of medical and developmental complications are high. We investigated the association of maternal education...
Cohort Profile: Effective Perinatal Intensive Care in Europe (EPICE) very prete...
Zeitlin, J; Maier, RF; Cuttini, M; Aden, U; Boerch, K; Gadzinowski, J; Jarreau, PH; Lebeer, J; Norman, M; Pedersen, P; Petrou, S; Pfeil, JM; Toome, LThe EPICE cohort is a geographically defined study of still-births and live births from 22 þ 0 to 31 þ 6 weeks of gestation in 19 European regions (Fig. 1). Regions were selected with respect to geographic and organizational diversity and feasibility, meaning they had systems for collecting population data on VPT babies that could be modified to integrate the study protocol. In France, the EPICE study includes ...
Priorities for collaborative research using very preterm birth cohorts
Zeitlin, J; Sentenac, M; Morgan, AS; Ancel, PY; Barros, H; Cuttini, M; Draper, E; Johnson, S; Lebeer, J; Maier, RF; Norman, M; Varendi, HObjectives To develop research priorities on the consequences of very preterm (VPT) birth for the RECAP Preterm platform which brings together data from 23 European VPT birth cohorts. Design and setting This study used a two-round modified Delphi consensus process. Round 1 was based on 28 research themes related to childhood outcomes (<12 years) derived from consultations with cohort researchers. An external pa...