Introduction: A distinctive bleeding history is the first diagnostic stage of congenital hemorrhagic diseases. Furthermore, since it is in fact an assessment of the patient’s phenotype, it is not a (mere) complementary diagnostic method or test - it is an integral and intrinsic step to establish the patient’s clinical history, which is a medical act. The International Society on Thrombosis and Haemostasis-Bleed...
O presente Relatório Final contempla uma breve descrição das Práticas de Ensino Supervisionadas (PES), desenvolvidas no âmbito de mestrado em Educação Pré-Escolar e Ensino do 1º Ciclo do Ensino Básico. O mesmo resulta de uma observação e reflexão sustentada, produto da experiência das PES, no ano letivo de 2021/2022. A partir da observação direta participante de uma turma de 3º ano do ensino básico, constituída...
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Joint deterioration and associated chronic pain are common among people with haemophilia (PWH), having an impact on quality-of-life. Though non-pharmacological strategies are recommended, psychological interventions to promote pain control and quality-of-life have scarcely been tested in haemophilia. This randomised controlled pilot trial aimed to assess feasibility, acceptability and effectiveness of hypnosis ...
Inherited thrombophilias are a group of clinical conditions in which there is a genetic variant defect associated with a predisposition to thrombosis. Genetic testing for inherited thrombophilias has been used in the diagnosis of specific thrombophila at our centre for the last 20 years, this work will summarize our experience.
Hemophilia is a rare genetic bleeding disorder associated with pain, impaired functionality, and decreased quality of life (QoL). Several studies have focused on patient-reported outcomes of people with hemophilia (PWH) worldwide, but no such data are available for Portugal. This survey aimed to describe sociodemographic, clinical, and psychosocial characteristics of PWH of all ages in Portugal. Questionnaires ...
Introduction Haemophilia is a bleeding disorder associated with significant pain, emotional distress, quality of life (QoL) impairment and considerable healthcare costs. Psychosocial health and effective pain management are considered essential end points for optimal haemophilia care, but there is a significant gap in evidence-based treatments targeting these outcomes in people with haemophilia (PWH). Psycholog...
O projecto de intervenção educativa Escola & Pais de Mãos Dadas é dinamizado por uma equipa de investigadores do Departamento de Ciências da Educação da Universidade dos Açores, Ponta Delgada, em colaboração com docentes de uma escola, situada nas proximidades da Universidade. As responsáveis pelo projecto apostam em estratégias de investigação-acção, procurando suscitar e apoiar mudanças, dinamizadas pelos act...