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Difficulties in the diagnosis and treatment of rare diseases according to the p...
Lopes, Marcos Thomazin; Koch, Vera Hermina; Sarrubbi-Junior, Vicente; Gallo, Paulo Rogério; Carneiro-Sampaio, MagdaOBJECTIVES: The aim of this study is to present a survey of vulnerabilities and to suggest approaches for the treatment of rare diseases according to the perceptions of a group of affected individuals, patient association representatives and health care professionals. METHODS: The focus group technique was used in interviews with patients and primary caregivers, patient support groups/non-governmental organizat...
Date: 2018
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Origin: Oasisbr