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Effective for Whom? A Review of Psychological and Social Intervention Recommend...
Neal, David; Bartels, Sara Laureen; Berdai Chaouni, Saloua; Caprioli, Thais; Comas-Herrera, Adelina; Chattat, Rabih; Diaz, Ana; Dröes, Rose-MarieFunding Information: This research was funded by the Health Research Board [JPND-WG-2022-1]. It is an EU Joint Programme\u2014Neurodegenerative Disease Research (JPND) project supported under the aegis of JPND\u2014www.jpnd.eu. For C.G., this is independent research funded by the National Institute for Health and Care Research Applied Research Collaboration North West Coast (ARC NWC). The views expressed in thi...
Sense of coherence, subjective burden, and anxiety and depression symptoms in c...
Gonçalves-Pereira, M.; Marques, Maria J.; Alves, Regina F.; Jelley, Hannah; Wolfs, Claire; Meyer, Gabriele; Bieber, Anja; Irving, Kate; Hopper, LouiseFunding Information: Actifcare was an EU Joint Programme - Neurodegenerative Disease Research (JPND/2013/2) project. The project was supported through the following funding organizations under the aegis of JPND\u2014www.jpnd.eu: Germany, Bundesministerium fur Bildung und Forschung (BMBF); Ireland, Health Research Board (HRB); Italy, Italian Ministry of Health; Netherlands, The Netherlands Organisation for Healt...
Informal care for people with dementia in Europe
Handels, Ron; Hataiyusuk, Somboon; Wimo, Anders; Sköldunger, Anders; Bakker, Christian; Bieber, Anja; Ciccone, Alfonso; Defanti, Carlo AlbertoPublisher Copyright: Copyright © 2024 The Author(s). Published by Elsevier Masson SAS.. All rights reserved.; INTRODUCTION: Informal care estimates for use in health-economic models are lacking. We aimed to estimate the association between informal care time and dementia symptoms across Europe. METHODS: A secondary analysis was performed on 13,529 observations in 5,369 persons from 9 European pooled cohort or t...
What are the unmet needs in people affected by dementia? A scoping review of re...
Koh, Wei Qi; Roes, Martina; de Vugt, Marjolein; Szegin, Dugyu; Gonçalves-Pereira, M.; Müller, Nicole; Diaz, Ana; Casey, Dympna; Ingram, ChantalFunding Information: This scoping review of reviews aims to map the existing research evidence on the unmet needs of people affected by dementia, their informal caregivers and professional caregivers. Given that the purpose of this review is to provide a broad overview of this topic, a scoping review methodology is considered appropriate (Munn et al., ). The key research question is: \u2018What are the unmet ne...
Needs for Care, Service Use and Quality of Life in Dementia
Gonçalves-Pereira, M.; Marques, Maria J.; Alves, Regina F.; Verdelho, Ana; Balsinha, Conceição; Alves, Luísa; Reis, Teresa ALVES; Woods, BobFunding Information: The Actifcare project in Portugal had support from Funda\u00E7\u00E3o para a Ci\u00EAncia e a Tecnologia (FCT-JPND-HC-0001/2012), under the JPND (EU Joint Programme \u2013 Neurodegenerative Disease Research) initiative (JPND/2013/2). This secondary analysis was funded by Funda\u00E7\u00E3o Ci\u00EAncia e Tecnologia, I.P. national support through CHRC (UIDP/04923/2020). Publisher Copyright: ...
The quality of family relationships in dementia
Marques, Maria J.; Gonçalves-Pereira, M.; de Vugt, Marjolein; Verhey, Frans; Woods, BobFunding Information: This is an EU Joint Programme - Neurodegenerative Disease Research (JPND) project ( https://www.jpnd.eu/ ). The Actifcare Consortium partners are Maastricht University (NL), Martin-Luther University Halle-Wittenberg (DE), Bangor University (UK), Nottingham University (UK), Karolinska Institutet (SE), Oslo University Hospital (NO), Dublin City University (IE), IRCCS Istituto Centro San Giova...
Addressing relationship quality of people with dementia and their family carers
Marques, Maria J.; Woods, Bob; Jelley, Hannah; Kerpershoek, Liselot; Hopper, Louise; Irving, Kate; Bieber, Anja; Stephan, Astrid; Sköldunger, AndersPublisher Copyright: Copyright © 2024 Marques, Woods, Jelley, Kerpershoek, Hopper, Irving, Bieber, Stephan, Sköldunger, Sjölund, Selbaek, Røsvik, Zanetti, Portolani, Marôco, Janssen, Tan, de Vugt, Verhey and Gonçalves-Pereira.; Objective: The quality of the relationship between persons with dementia and family carers influences health and quality-of-life outcomes. Little is known regarding those at higher risk ...
Associations between unmet needs for daytime activities and company and scores ...
Michelet, Mona; Selbaek, Geir; Strand, Bjørn Heine; Lund, Anne; Engedal, Knut; Bieber, Anja; Gonçalves-Pereira, M.; Hopper, Louise; Irving, KateOBJECTIVES: To examine prospectively the association between unmet needs for daytime activities and company and behavioural and psychological symptoms of dementia. METHODS: We included 451 people with mild or moderate dementia, from eight European countries, who were assessed three times over 12 months. Unmet needs were measured with the Camberwell Assessment of Need for the Elderly. Three sub-syndromes of the ...
Development of best practice recommendations to enhance access to and use of fo...
Røsvik, Janne; Michelet, Mona; Engedal, Knut; Bergh, Sverre; Bieber, Anja; Gonçalves-Pereira, M.; Portolani, Daniel Michael; Hopper, LouiseFunding: The Research Council of Norway; Portugal, Foundation for Science and Technology (FCT - JPND-HC/0001/2012); the United Kingdom, Economic and Social Research Council. The funding organisations did not influence the design of the study or the content of the manuscript; Objectives: Home-dwelling people with dementia and their informal carers experience barriers impeding access to community care services. T...
Is there equity in initial access to formal dementia care in Europe? The Anders...
Kerpershoek, Liselot; de Vugt, Marjolein; Wolfs, Claire; Orrell, Martin; Woods, Bob; Jelley, Hannah; Meyer, Gabriele; Bieber, Anja; Stephan, AstridFunding: The project is supported through the following funding organizations under the aegis of JPND—www.jpnd.eu [grant number 733051001]. Germany, Ministry of Education and Research, Ireland, Health research board, Italy, Ministry of Health, the Netherlands, The Netherlands organization for Health Research and Development, Sweden, The Swedish Research Council for Health, Working Life and Welfare, Norway, The ...