9 documents found, page 1 of 1
Creation and Validation of the European Portuguese Version of the Systemic Lupu...
Ferreira, Pedro Lopes; Cunha, Rita Novais; Macieira, Carla; Fontes, Tomás; Inês, Luís; Maduro, Ana Isabel Ramos; Martins, Ana; Rajão, Frederico(1) Background: Patients with systemic lupus erythematous (SLE) experience profound effects on health-related quality of life (HRQoL) that cannot be explained by objective indicators of mortality and morbidity. This study aimed to adapt the SLE Quality of Life (SLEQoL) questionnaire to the European Portuguese population and to assess its reliability and validity for patients with SLE. (2) Methods: Two independe...
Anxiety and depression in patients with giant cell arteritis
Martinho, Joana Martins; Ponte, André; Dourado, Eduardo; Khmelinskii, Nikita; Barreira, Sofia C.; Machado, Ana R. Cruz; Macieira, Carla; Teixeira, VítorObjectives To compare the prevalence of anxiety and depression in patients with GCA with that in the general population, using the Hospital Anxiety and Depression Scale (HADS), and to identify independent predictors of these psychiatric manifestations in patients with GCA.Methods We conducted a cross-sectional study including all patients diagnosed with GCA followed during 1 year in a vasculitis outpatient clin...
An unusual cause of shoulder pain in a young woman with systemic sclerosis: iso...
Fontes, Tomás; António, Manuel; Macieira, Carla; Fonseca, João Eurico; Polido Pereira, JoaquimA 25-year-old woman with a recent diagnosis of SSc (anti-topo 1), expressed by progressive scleroderma, oesophageal dysmotility, serositis and RP, presented with bilateral shoulder pain and limited mobilization. The complaints prompted an US scan, which showed no synovitis or tendinopathy. However, intra-articular calcium deposits stood out, adhering to the hyaline cartilage of both humerus heads and moving wit...
A non-infectious uveitis multidisciplinary clinic in a tertiary referral center...
Leal, Ines; Romão, Vasco C.; Sousa Mano, Sofia; Khmelinskii, Nikita; Campanilho-Marques, Raquel; Ponte, Cristina; Macieira, CarlaNon-infectious uveitis (NIU) is a group of sight-threatening diseases that generates significant burden for the healthcare systems due to its adverse outcomes, irreversible structural complications in the eye with loss of visual function, limited clinical expertise and low-grade evidence for best practice. The usefulness of multidisciplinary care, specifically close collaboration between Rheumatologists and Oph...
Reuma.pt/vasculitis : the Portuguese vasculitis registry
Ponte, Cristina; Khmelinskii, Nikita; Teixeira, Vítor; Luz, Karine; Peixoto, Daniela; Rodrigues, Marília; Luís, Mariana; Teixeira, Lídia; Sousa, SandraBackground: The vasculitides are a group of rare diseases with different manifestations and outcomes. New therapeutic options have led to the need for long-term registries. The Rheumatic Diseases Portuguese Register, Reuma.pt, is a web-based electronic clinical record, created in 2008, which currently includes specific modules for 12 diseases and > 20,000 patients registered from 79 rheumatology centres. On Oct...
Rheumatology practice amidst the COVID-19 pandemic : a pragmatic view
Romão, Vasco C.; Cordeiro, Inês; Macieira, Carla; Oliveira-Ramos, Filipa; Romeu, José; Rosa, Carlos Miranda; Saavedra, Maria João; Saraiva, FernandoThe coronavirus disease 2019 (COVID-19) pandemic has come with many challenges for healthcare providers and patients alike. In addition to the direct burden it has placed on societies and health systems, it had a significant impact in the care of patients with chronic diseases, as healthcare resources were deployed to fight the crisis, and major travel and social restrictions were adopted. In the field of rheum...
Undifferentiated connective tissue disease : state of the art on clinical pract...
Antunes, Margarida; Scirè, Carlo Alberto; Talarico, Rosaria; Alexander, Tobias; Avcin, Tadej; Belocchi, Chiara; Doria, Andrea; Franceschini, FrancoThe term 'undifferentiated connective tissue disease' (UCTD) is generally used to describe clinical entities characterised by clinical and serological manifestations of systemic autoimmune diseases but not fulfilling the criteria for defined connective tissue diseases (CTDs). In this narrative review, we summarise the results of a systematic literature research, which was performed as part of the ERN ReCONNET p...
The Added Value of a Vasculitis Clinic in a Tertiary Referral Hospital
Khmelinskii, Nikita; Seixas, Maria Inês; Ponte, Cristina; Fonseca, João Eurico; Macieira, CarlaN/A.; N/A.
Beyond an Inflamed Ear
Ponte, Cristina; Macieira, CarlaKeywords: Ear Diseases; Ear, External; Polychondritis, Relapsing.; Palavras-chave: Doenças do Ouvido; Ouvido Externo; Policondrite Recidivante.