2 documents found, page 1 of 1
Usage and impact of patient‐reported outcomes in epilepsy
Vonck, Kristl; Biraben, Arnaud; Bosak, Magdalena; Jennum, Poul Jørgen; Kimiskidis, Vasilios K.; Marusic, Petr; Mitchell, James W.; Ferreira, LaraBackground: The use of patient-reported outcomes (PRO) in clinical practice is gaining increasing attention. This study aimed to provide a critical assessment of the current state-of-the-art and beliefs about the use of PRO in the management of people with epilepsy across some European countries. Methods Structured interviews were conducted with European experts to collect insights about (I) the personal experi...
A survey of the European Reference Network EpiCARE on clinical practice for sel...
Baumgartner, Tobias; Carreño, Mar; Rocamora, Rodrigo; Bisulli, Francesca; Boni, Antonella; Brázdil, Milan; Horak, Ondrej; Craiu, Dana; Pereira, CristinaObjective: Clinical care of rare and complex epilepsies is challenging, because evidence-based treatment guidelines are scarce, the experience of many physicians is limited, and interdisciplinary treatment of comorbidities is required. The pathomechanisms of rare epilepsies are, however, increasingly understood, which potentially fosters novel targeted therapies. The objectives of our survey were to obtain an o...