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Feedback of Individual Genetic Results to Research Participants: Is It Feasible...

Budin-Ljøsne, Isabelle; Mascalzoni, Deborah; Soini, Sirpa; Machado, Helena; Kaye, Jane; Bentzen, Heidi Beate; Rial-Sebbag, Emmanuelle; D'Abramo, Flavio

There is growing consensus that individual genetic research results that are scientifically robust, analytically valid, and clinically actionable should be offered to research participants. However, the general practice in European research projects is that results are usually not provided to research participants for many reasons. This article reports on the views of European experts and scholars who are membe...

Date: 2016 | Origin: Estudo Geral - Universidade de Coimbra

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