5 documents found, page 1 of 1
Factors associated with self-rated health in people with late-stage parkinson’s...
Pigott, Jennifer S.; Armstrong, Megan; Davies, Nathan; Davis, Daniel; Bloem, Bastiaan R.; Lorenzl, Stefan; Meissner, Wassilios G.; Odin, PerPurpose: To investigate the contributors to self-rated health in people with late-stage Parkinson's disease (PD) and cognitive impairment. Methods: A secondary analysis of baseline data from the international Care of Late-Stage Parkinsonism (CLaSP) cohort study was conducted. Participants with PD and either dementia or mild cognitive impairment or MMSE < 24/30 in the absence of major depression were included if...
Meaning in life in late-stage Parkinson’s disease: results from the care of lat...
Bublitz, Sarah K.; Brandstötter, Cornelia; Fegg, Martin; Ferreira, Joaquim J; Odin, Per; Bloem, Bastiaan R.; Meissner, Wassilios G.; Dodel, RichardThe Care of Late-Stage Parkinsonism (CLaSP) study is a longitudinal, multicentre, prospective cohort study to assess the needs and provision of care for people with late-stage Parkinson's disease and their caregivers in six European countries. As a cross-sectional study within the CLaSP study, 509 people with Parkinson's disease completed the "Schedule-for-Meaning-in-Life-Evaluation" (SMiLE) questionnaire. We c...
Factors associated with health‐related quality of life in late‐stage Parkinson'...
Rosqvist, Kristina; Odin, Per; Lorenzl, Stefan; Meissner, Wassilios G.; Bloem, Bastiaan R.; Ferreira, Joaquim J; Dodel, Richard; Schrag, AnetteBackground: There is limited knowledge on health-related quality of life (HRQoL) in late-stage Parkinson's disease (PD). Objective: To assess factors associated with HRQoL in patients with late-stage PD, with a focus on health care provision. Methods: The Care of Late Stage Parkinsonism (CLaSP) project is the largest study on late-stage PD to date. The current study analyzed data of 401 patients from 6 European...
A modified progressive supranuclear palsy rating scale
Grötsch, Marie‐Therese; Respondek, Gesine; Colosimo, Carlo; Compta, Yaroslau; Corvol, Jean Christophe; Ferreira, Joaquim J; Huber, Meret KoroniBackground: The Progressive Supranuclear Palsy Rating Scale is a prospectively validated physician-rated measure of disease severity for progressive supranuclear palsy. We hypothesized that, according to experts' opinion, individual scores of items would differ in relevance for patients' quality of life, functionality in daily living, and mortality. Thus, changes in the score may not equate to clinically meanin...
Caregiver burden in late-stage Parkinsonism and its associations
Kalampokini, Stefanial; Hommel, Adrianus L. A. J.; Lorenzl, Stefan; Ferreira, Joaquim J; Meissner, Wassilios G.; Odin, Per; Bloem, Bastiaan R.Background: Patients in the late stages of parkinsonism are highly dependent on others in their self-care and activities of daily living. However, few studies have assessed the physical, psychological and social consequences of caring for a person with late-stage parkinsonism. Patients and methods: Five hundred and six patients and their caregivers from the Care of Late Stage Parkinsonism (CLaSP) study were inc...