3 documents found, page 1 of 1
Proposal for a definition for response to treatment, inactive disease and damag...
Foeldvari, Ivan; Klotsche, Jens; Simonini, Gabriele; Edelsten, Clive; Angeles-Han, Sheila T; Bangsgaard, Regitze; de Boer, Joke; Brumm, GabrieleBackground: JIA-associated uveitis (JIAU) is a serious, sight-threatening disease with significant long-term complications and risk of blindness, even with improved contemporary treatments. The MIWGUC was set up in order to propose specific JIAU activity and response items and to validate their applicability for clinical outcome studies. Methods: The group consists of 8 paediatric rheumatologists and 7 ophthalm...
Phenotypic variability and disparities in treatment and outcomes of childhood a...
Consolaro, Alessandro; Giancane, Gabriella; Alongi, Alessandra; van Dijkhuizen, Evert Hendrik Pieter; Aggarwal, Amita; Al-Mayouf, Sulaiman M.Made available in DSpace on 2019-10-05T16:54:20Z (GMT). No. of bitstreams: 0 Previous issue date: 2019-04-01; IRCCS Istituto Giannina Gaslini; Background To our knowledge, the characteristics and burden of childhood arthritis have never been studied on a worldwide basis. We aimed to investigate, with a cross-sectional study, the prevalence of disease categories, treatment methods, and disease status in patients...
Health related quality of life measure in systemic pediatric rheumatic diseases...
Moorthy, Lakshmi Nandini; Roy, Elizabeth; Kurra, Vamsi; Peterson, Margaret G. E.; Hassett, Afton L.; Lehman, Thomas J. A.; Scot, ChristiaanMade available in DSpace on 2015-03-18T15:55:50Z (GMT). No. of bitstreams: 0 Previous issue date: 2014-11-25Bitstream added on 2015-03-18T16:28:34Z : No. of bitstreams: 1 WOS000346520700001.pdf: 205186 bytes, checksum: c29e39dcb1d87ab0b78ebf2affc7a14b (MD5); Background: Rheumatic diseases in children are associated with significant morbidity and poor health-related quality of life (HRQOL). There is no health-re...