8 documents found, page 1 of 1
A systematic practice review: providing palliative care for people with Parkins...
Garon, Michela; Weck, Christiane; Rosqvist, Kristina; Odin, Per; Schrag, Anette; Krikmann, Ülle; Pedrosa, David J; Antonini, Angelo; Lorenzo, StefanBackground: People with Parkinson’s disease has significant and increasing physical, psychosocial and spiritual needs, as well as problems with coordination and continuity of care. Despite the benefits that palliative care could offer, there is no consensus on how it should be delivered. Aim: The aim of this study is to provide a pragmatic overview of the evidence to make clinical recommendations to improve pal...
Factors associated with self-rated health in people with late-stage parkinson’s...
Pigott, Jennifer S.; Armstrong, Megan; Davies, Nathan; Davis, Daniel; Bloem, Bastiaan R.; Lorenzl, Stefan; Meissner, Wassilios G.; Odin, PerPurpose: To investigate the contributors to self-rated health in people with late-stage Parkinson's disease (PD) and cognitive impairment. Methods: A secondary analysis of baseline data from the international Care of Late-Stage Parkinsonism (CLaSP) cohort study was conducted. Participants with PD and either dementia or mild cognitive impairment or MMSE < 24/30 in the absence of major depression were included if...
Meaning in life in late-stage Parkinson’s disease: results from the care of lat...
Bublitz, Sarah K.; Brandstötter, Cornelia; Fegg, Martin; Ferreira, Joaquim J; Odin, Per; Bloem, Bastiaan R.; Meissner, Wassilios G.; Dodel, RichardThe Care of Late-Stage Parkinsonism (CLaSP) study is a longitudinal, multicentre, prospective cohort study to assess the needs and provision of care for people with late-stage Parkinson's disease and their caregivers in six European countries. As a cross-sectional study within the CLaSP study, 509 people with Parkinson's disease completed the "Schedule-for-Meaning-in-Life-Evaluation" (SMiLE) questionnaire. We c...
Does the 5–2-1 criteria identify patients with advanced Parkinson's disease? Re...
Malaty, Irene A.; Martinez-Martin, Pablo; Chaudhuri, K. Ray; Odin, Per; Skorvanek, Matej; Jimenez-Shahed, Joohi; Soileau, Michael J.; Lindvall, SusannaBackground: The burden of Parkinson’s disease (PD) worsens with disease progression. However, the lack of objective and uniform disease classification challenges our understanding of the incremental burden in patients with advanced Parkinson’s disease (APD) and suboptimal medication control. The 5–2-1 criteria was proposed by clinical consensus to identify patients with advancing PD. Our objective was to evalua...
Psychometric properties of clinical indicators for identification and managemen...
Antonini, Angelo; Pahwa, Rajesh; Odin, Per; Henriksen, Tove; Soileau, Michael J.; Rodriguez-Cruz, Ramon; Isaacson, Stuart H.; Merola, AristideIntroduction: Standardized and validated criteria to define advanced Parkinson’s disease (PD) or identify patient eligibility for device-aided therapy are needed. This study assessed the psychometric properties of clinical indicators of advanced PD and eligibility for device-aided therapy in a large population. Methods: This retrospective analysis of the Adelphi Parkinson’s Disease Specific Programme collected ...
Factors associated with health‐related quality of life in late‐stage Parkinson'...
Rosqvist, Kristina; Odin, Per; Lorenzl, Stefan; Meissner, Wassilios G.; Bloem, Bastiaan R.; Ferreira, Joaquim J; Dodel, Richard; Schrag, AnetteBackground: There is limited knowledge on health-related quality of life (HRQoL) in late-stage Parkinson's disease (PD). Objective: To assess factors associated with HRQoL in patients with late-stage PD, with a focus on health care provision. Methods: The Care of Late Stage Parkinsonism (CLaSP) project is the largest study on late-stage PD to date. The current study analyzed data of 401 patients from 6 European...
Caregiver burden in late-stage Parkinsonism and its associations
Kalampokini, Stefanial; Hommel, Adrianus L. A. J.; Lorenzl, Stefan; Ferreira, Joaquim J; Meissner, Wassilios G.; Odin, Per; Bloem, Bastiaan R.Background: Patients in the late stages of parkinsonism are highly dependent on others in their self-care and activities of daily living. However, few studies have assessed the physical, psychological and social consequences of caring for a person with late-stage parkinsonism. Patients and methods: Five hundred and six patients and their caregivers from the Care of Late Stage Parkinsonism (CLaSP) study were inc...
The prevalence and determinants of neuropsychiatric symptoms in late‐stage Park...
Hommel, Adrianus L. A. J.; Meinders, Marjan J.; Lorenzl, Stefan; Dodel, Richard; Coelho, Miguel; Ferreira, Joaquim J; Laurens, BriceBackground: Late-stage parkinsonism and Parkinson's disease (PD) are insufficiently studied population. Although neuropsychiatric symptoms (eg, psychosis, depression, anxiety, behavioral problems) are frequently present, their prevalence and clinical predictors remain unknown. Objective: To determine the prevalence and predictors of neuropsychiatric symptoms in late-stage PD. Methods: We conducted a multination...