68 documents found, page 1 of 7
Optimizing advance care planning in dementia: recommendations from a 33-country...
European Association for Palliative Care (EAPC); Steen, Jenny T. van der; Block, Lieve Van den; Nakanishi, Miharu; Dening, Karen HarrisonContext: Advance care planning (ACP) is relevant yet challenging with cognitive decline. Objective: To provide evidence and consensus-based clinical recommendations for how to conduct ACP in dementia. Methods: International Delphi study conducted by the European Association for Palliative Care ‘ACP in dementia’ taskforce with four online surveys (September 2021-June 2022). A panel of 107 experts from 33 countri...
Provas de Agregação, Ciências e Tecnologias da Saúde e Bem-estar
Pereira, Sandra MartinsDocumentação das Provas de Agregação de Sandra Martins Pereira, em Ciências e Tecnologias da Saúde e Bem-estar, contendo Curriculum Vitae; lição:"Ethical decisions and decision-making in palliative and end-of-life care: nursing involvement and implications for the future" e Relatório de Unidade Curricular: "Ethics and integrity in health, science and technology", Área disciplinar de Ciências e Tecnologias da Sa...
Bioethical frameworks in end of life care decision-making
Pereira, Sandra Martins; Borges, Paulo J.; Hernández-Marrero, PabloThis chapter provides an overview of how the medicalisation of dying and increasing access to high-technology interventions at the end of life have led to multiplying ethical challenges in decision-making in biomedical settings around the world. Bioethical frameworks and models exist to aid healthcare professionals and teams in navigating complex ethico-clinical decision-making processes. Five different framewo...
A bioethical perspective on the meanings behind a wish to hasten death: a meta-...
Borges, Paulo J.; Hernández-Marrero, Pablo; Pereira, Sandra MartinsBackground: The expressions of a “wish to hasten death” or “wish to die” raise ethical concerns and challenges. These expressions are related to ethical principles intertwined within the field of medical ethics, particularly in end-of-life care. Although some reviews were conducted about this topic, none of them provides an in-depth analysis of the meanings behind the “wish to hasten death/die” based specifical...
Cultivating excellence in palliative care education and training: a network and...
Paal, Piret; Mason, Stephen; Larkin, Philip; Hökkä, Minna; Economos, Guillaume; Pawłowski, Leszek; Pereira, Sandra Martins; Hernández-Marrero, PabloBackground: In this study, we employed a collaborative and participatory approach, underpinned by pragmatic methodology, to explore and elucidate the interconnections within the research network of the COllaboratively DEveloped culturallY Appropriate and inclusive Assessment tool for Palliative Care EDUcation the European Cooperation in Science and Technology Action. We demonstrate how the analysis of the publi...
What are the triggers for palliative care referral in burn intensive care units...
Ribeiro, André Filipe; Pereira, Sandra Martins; Nunes, Rui; Hernández-Marrero, PabloBackground: Burns are a global public health problem, accounting for around 300,000 deaths annually. Burns have significant consequences for patients, families, healthcare teams and systems. Evidence suggests that the integration of palliative care in burn intensive care units improves patients’ comfort, decision-making processes, and family care. Research is needed on how to optimise palliative care referrals....
Future policy and research for advance care planning in dementia: consensus rec...
Nakanishi, Miharu; Pereira, Sandra Martins; Van den Block, Lieve; Parker, Deborah; Harrison-Dening, Karen; Di Giulio, Paola; in der Schmitten, JürgenAdvance care planning (ACP) is growing in importance in the global agenda for dementia care. The European Association for Palliative Care Taskforce (EAPC) on ACP in Dementia aimed to provide recommendations for policy initiatives and future research. We conducted a four-round Delphi study with a 33-country panel of 107 experts between September 2021 and June 2022 and approval by the EAPC Board. Consensus was ac...
A systematic practice review: providing palliative care for people with Parkins...
Garon, Michela; Weck, Christiane; Rosqvist, Kristina; Odin, Per; Schrag, Anette; Krikmann, Ülle; Pedrosa, David J; Antonini, Angelo; Lorenzo, StefanBackground: People with Parkinson’s disease has significant and increasing physical, psychosocial and spiritual needs, as well as problems with coordination and continuity of care. Despite the benefits that palliative care could offer, there is no consensus on how it should be delivered. Aim: The aim of this study is to provide a pragmatic overview of the evidence to make clinical recommendations to improve pal...
Consensus definition of advance care planning in dementia: a 33-country Delphi ...
European Association for Palliative Care; Steen, Jenny T. van der; Nakanishi, Miharu; Van den Block, Lieve; Di Giulio, Paola; Gonella, SilviaINTRODUCTION: Existing advance care planning (ACP) definitional frameworks apply to individuals with decision-making capacity. We aimed to conceptualize ACP for dementia in terms of its definition and issues that deserve particular attention. METHODS: Delphi study with phases: (A) adaptation of a generic ACP framework by a task force of the European Association for Palliative Care (EAPC); (B) four online survey...
Enhancing ethical decision-making at the end-of-life: empowering conditions or ...
Hernández-Marrero, Pablo; Pereira, Sandra MartinsBackground: Healthcare professionals are increasingly making end-of-life decisions (ELDs), which have become an integrated dimension of contemporary palliative and end-of-life care. ELDs are medical decisions made at the end of life that may have a potentially life-shortening effect. These situations are very often moments of high vulnerability with a profound impact on patients' ability to exercise their auton...