3 documents found, page 1 of 1
Digital health solution for monitoring and surveillance of Amyotrophic Lateral ...
Barbalho, Ingridy M. P.; Fonseca, Aleika L. A.; Fernandes, Felipe; Henriques, Jorge; Gil, Paulo; Nagem, Danilo; Lindquist, Raquel; Lima, Thaísa S.Amyotrophic Lateral Sclerosis (ALS) is a complex and rare neurodegenerative disease given its heterogeneity. Despite being known for many years, few countries have accurate information about the characteristics of people diagnosed with ALS, such as data regarding diagnosis and clinical features of the disease. In Brazil, the lack of information about ALS limits data for the research progress and public policy d...
Digital Alternative Communication for Individuals with Amyotrophic Lateral Scle...
Fernandes, Felipe; Barbalho, Ingridy; Bispo Júnior, Arnaldo; Alves, Luca; Nagem, Danilo; Lins, Hertz; Arrais Júnior, Ernano; Coutinho, Karilany D.Amyotrophic Lateral Sclerosis is a disease that compromises the motor system and the functional abilities of the person in an irreversible way, causing the progressive loss of the ability to communicate. Tools based on Augmentative and Alternative Communication are essential for promoting autonomy and improving communication, life quality, and survival. This Systematic Literature Review aimed to provide evidenc...
National registry for amyotrophic lateral sclerosis: a systematic review for st...
Barbalho, Ingridy; Valentim, Ricardo; Júnior, Mário Dourado; Barros, Daniele; Júnior, Hércules Pedrosa; Fernandes, Felipe; Teixeira, César A.Background: This article comprises a systematic review of the literature that aims at researching and analyzing the frequently applied guidelines for structuring national databases of epidemiological surveillance for motor neuron diseases, especially Amyotrophic Lateral Sclerosis (ALS). Methods: We searched for articles published from January 2015 to September 2019 on online databases as PubMed - U.S. National ...