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Demonstrating trustworthiness when collecting and sharing genomic data: public ...
Milne, R; Morley, KI; Almarri, MA; Anwer, S; Atutornu, J; Baranova, EE; Bevan, P; Cerezo, M; Cong, Y; Costa, A; Critchley, C; Fernow, J; Goodhand, PBackground: Public trust is central to the collection of genomic and health data and the sustainability of genomic research. To merit trust, those involved in collecting and sharing data need to demonstrate they are trustworthy. However, it is unclear what measures are most likely to demonstrate this. Methods: We analyse the ‘Your DNA, Your Say’ online survey of public perspectives on genomic data sharing inclu...
Date: 2021
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Origin: Repositório Aberto da Universidade do Porto