48 documents found, page 1 of 5
Quality of life and family management of paediatric chronic condition amidst th...
Andrade, Luísa; Lemos, Sara Raquel Machado; Barbieri-Figueiredo, MC; Lima, LigiaPurpose: This study aimed to describe the perception of parents of children/adolescents with chronic conditions of their quality of life and family functioning during the COVID-19 pandemic and explore how the COVID-19 pandemic affected family management of children/adolescents' chronic conditions. Design and methods: A total of 237 parents of children/adolescents with chronic conditions participated in this cro...
Understanding quality of life's challenges in sarcoma patients: A mixed-methods...
Almeida, Ana Maria; Lima, Ligia; Martins, TeresaPurpose: Sarcoma, a highly aggressive form of cancer, profoundly affects patients both physically and psychologically. This study aimed to assess sarcoma patients' health-related quality of life and explore their experiences of living with the disease and their specific care requirements. Methods: This research employed a convergent parallel mixed-methods design. Fifty-two sarcoma patients completed the Europea...
Psychometric Properties of the Portuguese Version of the Iceland-Family Perceiv...
Lemos, Sara; Andrade, Luísa; Barbieri-Figueiredo, M. C.; Martins, Teresa; Lima, LigiaThe support from nurses perceived by family members of children with chronic conditions has been shown to be a protective factor at different levels in a family’s health. As such, nurses need to have instruments that assess this perception to increase the quality of the care provided to those families. This methodological study aimed to analyze the psychometric properties of the Portuguese translation of the Ic...
Os Enfermeiros face à COVID-19: conhecimentos, atitudes e perceção de risco
Martins, Cátia; Lima, Ligia; Bastos, CelesteEnquadramento: a COVID-19 é uma doença infeciosa que pela sua alta transmissibilidade, rapidamente se tornou pandémica. Os profissionais de saúde, em especial os enfermeiros, têm maior risco de exposição pois encontram-se na frente de combate a esta pandemia. Objetivos: o estudo tem como objetivo explorar os conhecimentos, as atitudes, a perceção de risco e a perceção de proteção dos enfermeiros face à COVID-...
Psychometric properties of the European Portuguese version of the Pediatric Qua...
Lima, Ligia; Lemos, Sara; Barbieri-Figueiredo, M. C.; Martins, Teresa; Andrade, LuísaPurpose This study aims to assess the psychometric properties of the European Portuguese version of the Pediatric Quality of Life Inventory™ Family Impact Module in parents of children/adolescents with chronic health conditions. Design and Methods The European Portuguese version of the Pediatric Quality of Life Inventory™ Family Impact Module was administered to 237 parents of children/adolescents with chronic ...
Tratamento com Perfusão Subcutânea Contínua de Insulina na adolescência – a per...
Lima, Ligia; Silva, Rute; Andrade, LuísaEnquadramento: a Diabetes Mellitus tipo 1 é uma doença crónica que afeta maioritariamente crianças e jovens. No seu tratamento a insulinoterapia é essencial. A insulina pode ser administrada por Múltiplas Injeções Diárias (MID) ou por sistema de Perfusão Subcutânea Contínua de Insulina (PSCI). Este último tem vantagens, mas o processo de adaptação é exigente. Objetivo: conhecer a perceção das mães relativa ao s...
Experiencia de adultos mayores «PT4Ageing». Un programa de autogestión de enfer...
Santos, Célia; Fernandes, Carla Sílvia; Bastos, Celeste; Cruz, Márcia; Costa, Sandra; Lima, LigiaObjetivo Este estudio buscó describir la experiencia de un grupo de adultos mayores que participaron en un programa de autogestión de enfermedades crónicas. Métodos El estudio empleó un enfoque fenomenológico cualitativo. Los participantes fueron ocho ancianos y los datos se recogieron mediante entrevistas semiestructuradas. Los datos se analizaron mediante análisis temático. Resultados Del análisis surgieron c...
Monitoring Patient-Reported Outcomes in Self-management of Postsurgical Symptom...
Almeida, Ana M.; Martins, Teresa; Lima, LigiaBackground Surgery is used widely for cancer treatment, and in most types, after discharge, patients usually report multiple symptoms, which, if not controlled, can put postoperative recovery at risk. Understanding which patient-reported outcomes (PROs) should be monitored could have a significant impact on reducing the symptom burden associated with cancer and its treatment by playing a pivotal role in develop...
Satisfação com o tratamento e qualidade de vida de adolescentes com DM1 em uso ...
Lima, Ligia; Cardoso, Helena; Martins, TeresaIntrodução: O sistema de perfusão subcutânea contínua de insulina (PSCI) tem sido priorizado no controlo metabólico de crianças e jovens com Diabetes Mellitus tipo 1 (DM1). Objetivo: Avaliar a qualidade de vida e a satisfação com o tratamento em adolescentes com DM1 que utilizam o sistema PSCI; Analisar o papel da qualidade de vida na predição da sua satisfação com o tratamento. Métodos: Participaram 77 adolesc...
Psychometric Properties of the Portuguese Version of the Iceland-Family Perceiv...
Lemos, Sara; Andrade, Luísa; Barbieri-Figueiredo, MC; Martins, Teresa; Lima, LigiaAbstract: The support from nurses perceived by family members of children with chronic conditions has been shown to be a protective factor at different levels in a family’s health. As such, nurses need to have instruments that assess this perception to increase the quality of the care provided to those families. This methodological study aimed to analyze the psychometric properties of the Portuguese translation...