2 documents found, page 1 of 1
Holistic management of patients with progressive pulmonary fibrosis
Oliveira, Ana; Fabbri, Gaia; Gille, Thomas; Bargagli, Elena; Duchemann, Boris; Evans, Rachel; Pinnock, Hilary; Holland, Anne E; Renzoni, ElisabettaProgressive pulmonary fibrosis (PF) is a complex interstitial lung disease that impacts substantially on patients' daily lives, requiring personalised and integrated care. We summarise the main needs of patients with PF and their caregivers, and suggest a supportive care approach. Individualised care, education, emotional and psychological support, specialised treatments, and better access to information and re...
Managing Granulomatous-Lymphocytic Interstitial Lung Disease in Common Variable...
van de Ven, Annick A. J. M.; Alfaro, Tiago M.; Robinson, Alexandra; Baumann, Ulrich; Bergeron, Anne; Burns, Siobhan O.; Condliffe, Alison M.Background: Granulomatous–lymphocytic interstitial lung disease (GLILD) is a rare, potentially severe pulmonary complication of common variable immunodeficiency disorders (CVID). Informative clinical trials and consensus on management are lacking. Aims: The European GLILD network (e-GLILDnet) aims to describe how GLILD is currently managed in clinical practice and to determine the main uncertainties and unmet n...