Objective: To understand the construction of the social support network for the care of a young person with a rare disease. Methodology: A study with a qualitative approach, such as a case study, carried out with the family of a young man with Epidermolysis Bullosa who lived in the metropolitan region of the Vale do Rio Cuiabá in Mato Grosso, Brazil. Data were collected in three meetings between October 2017 an...
Submitted by Ronaldo Antonio da Silva (ronaldomed@hotmail.com) on 2019-04-25T16:13:47Z No. of bitstreams: 1 DOUTORADO RONALDO final.pdf: 12992411 bytes, checksum: 2770671a3208b1999f9990dd2a43a6dc (MD5); Approved for entry into archive by ROSANGELA APARECIDA LOBO null (rosangelalobo@btu.unesp.br) on 2019-04-26T13:58:41Z (GMT) No. of bitstreams: 1 silva_ra_dr_bot.pdf: 12992411 bytes, checksum: 2770671a3208b1999f9...
Submitted by Vitor Silverio Rodrigues (vitorsrodrigues@reitoria.unesp.br) on 2014-05-27T11:21:43Z No. of bitstreams: 0Bitstream added on 2014-05-27T14:28:34Z : No. of bitstreams: 1 2-s2.0-31144438522.pdf: 63664 bytes, checksum: 1ba0937d3aa2065bceedbfc83e261d43 (MD5); Made available in DSpace on 2014-05-27T11:21:43Z (GMT). No. of bitstreams: 0 Previous issue date: 2005-12-01; CET-SBA Departamento de Anestesiolog...
Orientador: Oscar Antonio Braunbeck; Dissertação (mestrado) - Universidade Estadual de Campinas, Faculdade de Engenharia Agricola; Mestrado