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Sense of coherence, subjective burden, and anxiety and depression symptoms in c...
Gonçalves-Pereira, M.; Marques, Maria J.; Alves, Regina F.; Jelley, Hannah; Wolfs, Claire; Meyer, Gabriele; Bieber, Anja; Irving, Kate; Hopper, LouiseFunding Information: Actifcare was an EU Joint Programme - Neurodegenerative Disease Research (JPND/2013/2) project. The project was supported through the following funding organizations under the aegis of JPND\u2014www.jpnd.eu: Germany, Bundesministerium fur Bildung und Forschung (BMBF); Ireland, Health Research Board (HRB); Italy, Italian Ministry of Health; Netherlands, The Netherlands Organisation for Healt...
Informal care for people with dementia in Europe
Handels, Ron; Hataiyusuk, Somboon; Wimo, Anders; Sköldunger, Anders; Bakker, Christian; Bieber, Anja; Ciccone, Alfonso; Defanti, Carlo AlbertoPublisher Copyright: Copyright © 2024 The Author(s). Published by Elsevier Masson SAS.. All rights reserved.; INTRODUCTION: Informal care estimates for use in health-economic models are lacking. We aimed to estimate the association between informal care time and dementia symptoms across Europe. METHODS: A secondary analysis was performed on 13,529 observations in 5,369 persons from 9 European pooled cohort or t...
Addressing relationship quality of people with dementia and their family carers
Marques, Maria J.; Woods, Bob; Jelley, Hannah; Kerpershoek, Liselot; Hopper, Louise; Irving, Kate; Bieber, Anja; Stephan, Astrid; Sköldunger, AndersPublisher Copyright: Copyright © 2024 Marques, Woods, Jelley, Kerpershoek, Hopper, Irving, Bieber, Stephan, Sköldunger, Sjölund, Selbaek, Røsvik, Zanetti, Portolani, Marôco, Janssen, Tan, de Vugt, Verhey and Gonçalves-Pereira.; Objective: The quality of the relationship between persons with dementia and family carers influences health and quality-of-life outcomes. Little is known regarding those at higher risk ...
Associations between unmet needs for daytime activities and company and scores ...
Michelet, Mona; Selbaek, Geir; Strand, Bjørn Heine; Lund, Anne; Engedal, Knut; Bieber, Anja; Gonçalves-Pereira, M.; Hopper, Louise; Irving, KateOBJECTIVES: To examine prospectively the association between unmet needs for daytime activities and company and behavioural and psychological symptoms of dementia. METHODS: We included 451 people with mild or moderate dementia, from eight European countries, who were assessed three times over 12 months. Unmet needs were measured with the Camberwell Assessment of Need for the Elderly. Three sub-syndromes of the ...
Development of best practice recommendations to enhance access to and use of fo...
Røsvik, Janne; Michelet, Mona; Engedal, Knut; Bergh, Sverre; Bieber, Anja; Gonçalves-Pereira, M.; Portolani, Daniel Michael; Hopper, LouiseFunding: The Research Council of Norway; Portugal, Foundation for Science and Technology (FCT - JPND-HC/0001/2012); the United Kingdom, Economic and Social Research Council. The funding organisations did not influence the design of the study or the content of the manuscript; Objectives: Home-dwelling people with dementia and their informal carers experience barriers impeding access to community care services. T...
Barriers and facilitators to the access to and use of formal dementia care
Stephan, Astrid; Bieber, Anja; Hopper, Louise; Joyce, Rachael; Irving, Kate; Zanetti, Orazio; Portolani, Elisa; Kerpershoek, Liselot; Verhey, FransThis is an EU Joint Programme - Neurodegenerative Disease Research (JPND) project (http://www.jpnd.eu). The project is supported through the following national funding organisations under the aegis of JPND: Germany, Ministry of Education and Research; Ireland, Health research board; Italy, Ministry of Health; the Netherlands, The Netherlands organisation for Health Research and Development; Sweden, The Swedish ...