Introduction: The COVID-19 pandemic poses unprecedented challenges for healthcare services and has led to changes in the usage pattern of the pediatric population. We aimed to describe the impact of COVID-19 on children’s health, wellbeing, and access to medical care in Portugal.Material and Methods: We conducted a cross-sectional study through an anonymous online survey via social media. The collected data ref...
Introduction: Head circumference is widely used as a marker of brain growth in very preterm infants (VPT). We aimed to evaluate the progression of head circumference (HC), extra-cerebral space (ECS) and estimated brain volume (EBV) of VPT between birth and term equivalent age (TEA) in comparison to term-born controls. Methods: We assessed prospectively a cohort of infants born at ≤32 weeks gestation and term co...
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Introduction: According to the Convention on the Rights of Children and the national standards of the Portuguese Directorate-General for Health, adolescents have the right to make decisions about their own health. The aim of this study was to identify the dynamics of the implementation of assent and informed consent in hospital settings.Material and Methods: Cross-sectional and multicentre study based on survey...
Introdução: A discinésia ciliar primária (DCP) é uma doença genética rara que determina alterações estruturais e/ou funcionais dos cílios, cujo diagnóstico foi alvo de padronização recente. O objectivo deste estudo foi descrever os resultados dum processo de diagnóstico centralizado aplicado a um grupo de crianças elegíveis. Métodos: Análise descritiva dos casos com diagnóstico de DCP efectuados num período de ...
Primary ciliary dyskinesia is a rare genetic disease caused by defects in the beating pattern and in the structure of cilia, resulting in chronic respiratory and otorhinolaryngologic disease in both children and adults. The diagnosis is complex and has recently been reviewed by different groups. It is reached through a panel of screening and diagnosis that includes nasal nitric oxide measurement, ciliary struct...
Introduction: Children who visit emergency departments and leave without being seen represent a multifactorial problem. We aimed to compare the sociodemographic characteristics of children who left and of those who did not leave, as well as to evaluate parental reasoning, subsequent use of medical care and patient outcome.Material and Methods: This was a prospective case-control study of a random sample of chil...