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Return of genomic results does not motivate intent to participate in research f...
Milne, R; Morley, KI; Almarri, MA; Atutornu, J; Baranova, EE; Bevan, P; Cerezo, M; Cong, Y; Costa, A; Feijao, C; de Freitas, C; Fernow, J; Goodhand, PPurpose: The aim of this study was to determine how attitudes toward the return of genomic research results vary internationally. Methods: We analyzed the “Your DNA, Your Say” online survey of public perspectives on genomic data sharing including responses from 36,268 individuals across 22 low-, middle-, and high-income countries, and these were gathered in 15 languages. We analyzed how participants responded w...
Demonstrating trustworthiness when collecting and sharing genomic data: public ...
Milne, R; Morley, KI; Almarri, MA; Anwer, S; Atutornu, J; Baranova, EE; Bevan, P; Cerezo, M; Cong, Y; Costa, A; Critchley, C; Fernow, J; Goodhand, PBackground: Public trust is central to the collection of genomic and health data and the sustainability of genomic research. To merit trust, those involved in collecting and sharing data need to demonstrate they are trustworthy. However, it is unclear what measures are most likely to demonstrate this. Methods: We analyse the ‘Your DNA, Your Say’ online survey of public perspectives on genomic data sharing inclu...