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The extended palliative phase of dementia – An integrative literature review

Hanson, Elizabeth; Hellström, Amanda; Sandvide, Åsa; Jackson, Graham A; MacRae, Rhoda; Waugh, Anna; Abreu, Wilson; Tolson, Debbie

This article presents an integrative literature review of the experience of dementia care associated with the extended palliative phase of dementia. The aim was to highlight how dementia is defined in the literature and describe what is known about the symptomatology and management of advanced dementia regarding the needs and preferences of the person with dementia and their family carer/s. There was no consist...


The relationship between frailty, functional dependence, and healthcare needs a...

Abreu, Wilson; Tolson, Debbie; Jackson, Graham A.; Staines, Harry; Costa, Nilza

This paper examines the healthcare needs of community‐dwelling older people living in Porto, Portugal, diagnosed with moderate or severe dementia, linked to functional dependency, cognitive decline, limitations in the activities of daily life, and frailty levels. A sample of 83 participants was recruited. Data were collected between 2013 and 2017. A sociodemographic questionnaire, the Clinical Dementia Rating (...


The relationship between frailty, functional dependence, and healthcare needs a...

Abreu, Wilson; Tolson, Debbie; Jackson, Graham A.; Staines, Harry; Costa, Nilza

This paper examines the healthcare needs of community-dwelling older people living in Porto, Portugal, diagnosed with moderate or severe dementia, linked to functional dependency, cognitive decline, limitations in the activities of daily life, and frailty levels. A sample of 83 participants was recruited. Data were collected between 2013 and 2017. A sociodemographic questionnaire, the Clinical Dementia Rating (...


Experiences of advanced dementia care in seven European countries: implications...

Lillo-Crespo, Manuel; Riquelme, Jorge; Macrae, Rhoda; Abreu, Wilson; Hanson, Elizabeth; Holmerova, Iva; Cabañero, Mª José; Ferrer, Rosario

There is a paucity of robust research concerning the care experiences of peoplewith advanced dementia within Europe. It is essential to understand these experiences if weare to address care inequalities and create impactful dementia policies to improve servicesthat support individuals and enable family caring.


Improving Advanced Dementia Care: An Interprofessional Palliare Learning Framework

Tolson, Debbie; Holmerova, Iva; Macrae, Rhoda; Waugh, Anna; Hvalič-Touzery, Simona; Abreu, Wilson; Lillo Crespo, Manuel; Merta, Anne; Hanson, Elizabeth


Achieving Prudent Dementia Care (Palliare): An International Policy and Practic...

Tolson, Debbie; Fleming, Anne; Hanson, Elizabeth; Abreu, Wilson; Crespo, Manuel Lillo; Macrae, Rhoda; Jackson, Graham; Hvalič-Touzery, Simona

This paper examines the provision of integrated advanced dementia care within seven European countries and critically reviews the potential contribution of the Prudent Healthcare perspective as a starting point for reform. Progressive efforts to innovate, promote quality and integrate care are tempered with the reality of resource constraints. Some policy makers in Europe and North America have turned their att...


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