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Sense of coherence, subjective burden, and anxiety and depression symptoms in c...

Gonçalves-Pereira, M.; Marques, Maria J.; Alves, Regina F.; Jelley, Hannah; Wolfs, Claire; Meyer, Gabriele; Bieber, Anja; Irving, Kate; Hopper, Louise

Funding Information: Actifcare was an EU Joint Programme - Neurodegenerative Disease Research (JPND/2013/2) project. The project was supported through the following funding organizations under the aegis of JPND\u2014www.jpnd.eu: Germany, Bundesministerium fur Bildung und Forschung (BMBF); Ireland, Health Research Board (HRB); Italy, Italian Ministry of Health; Netherlands, The Netherlands Organisation for Healt...


The quality of family relationships in dementia

Marques, Maria J.; Gonçalves-Pereira, M.; de Vugt, Marjolein; Verhey, Frans; Woods, Bob

Funding Information: This is an EU Joint Programme - Neurodegenerative Disease Research (JPND) project ( https://www.jpnd.eu/ ). The Actifcare Consortium partners are Maastricht University (NL), Martin-Luther University Halle-Wittenberg (DE), Bangor University (UK), Nottingham University (UK), Karolinska Institutet (SE), Oslo University Hospital (NO), Dublin City University (IE), IRCCS Istituto Centro San Giova...


Needs for Care, Service Use and Quality of Life in Dementia

Gonçalves-Pereira, M.; Marques, Maria J.; Alves, Regina F.; Verdelho, Ana; Balsinha, Conceição; Alves, Luísa; Reis, Teresa ALVES; Woods, Bob

Funding Information: The Actifcare project in Portugal had support from Funda\u00E7\u00E3o para a Ci\u00EAncia e a Tecnologia (FCT-JPND-HC-0001/2012), under the JPND (EU Joint Programme \u2013 Neurodegenerative Disease Research) initiative (JPND/2013/2). This secondary analysis was funded by Funda\u00E7\u00E3o Ci\u00EAncia e Tecnologia, I.P. national support through CHRC (UIDP/04923/2020). Publisher Copyright: ...


Addressing relationship quality of people with dementia and their family carers

Marques, Maria J.; Woods, Bob; Jelley, Hannah; Kerpershoek, Liselot; Hopper, Louise; Irving, Kate; Bieber, Anja; Stephan, Astrid; Sköldunger, Anders

Publisher Copyright: Copyright © 2024 Marques, Woods, Jelley, Kerpershoek, Hopper, Irving, Bieber, Stephan, Sköldunger, Sjölund, Selbaek, Røsvik, Zanetti, Portolani, Marôco, Janssen, Tan, de Vugt, Verhey and Gonçalves-Pereira.; Objective: The quality of the relationship between persons with dementia and family carers influences health and quality-of-life outcomes. Little is known regarding those at higher risk ...


Associations between unmet needs for daytime activities and company and scores ...

Michelet, Mona; Selbaek, Geir; Strand, Bjørn Heine; Lund, Anne; Engedal, Knut; Bieber, Anja; Gonçalves-Pereira, M.; Hopper, Louise; Irving, Kate

OBJECTIVES: To examine prospectively the association between unmet needs for daytime activities and company and behavioural and psychological symptoms of dementia. METHODS: We included 451 people with mild or moderate dementia, from eight European countries, who were assessed three times over 12 months. Unmet needs were measured with the Camberwell Assessment of Need for the Elderly. Three sub-syndromes of the ...


Development of best practice recommendations to enhance access to and use of fo...

Røsvik, Janne; Michelet, Mona; Engedal, Knut; Bergh, Sverre; Bieber, Anja; Gonçalves-Pereira, M.; Portolani, Daniel Michael; Hopper, Louise

Funding: The Research Council of Norway; Portugal, Foundation for Science and Technology (FCT - JPND-HC/0001/2012); the United Kingdom, Economic and Social Research Council. The funding organisations did not influence the design of the study or the content of the manuscript; Objectives: Home-dwelling people with dementia and their informal carers experience barriers impeding access to community care services. T...


Is there equity in initial access to formal dementia care in Europe? The Anders...

Kerpershoek, Liselot; de Vugt, Marjolein; Wolfs, Claire; Orrell, Martin; Woods, Bob; Jelley, Hannah; Meyer, Gabriele; Bieber, Anja; Stephan, Astrid

Funding: The project is supported through the following funding organizations under the aegis of JPND—www.jpnd.eu [grant number 733051001]. Germany, Ministry of Education and Research, Ireland, Health research board, Italy, Ministry of Health, the Netherlands, The Netherlands organization for Health Research and Development, Sweden, The Swedish Research Council for Health, Working Life and Welfare, Norway, The ...


Necessidades de cuidados e recurso aos serviços na demência

Gonçalves-Pereira, M.; Marques, Maria J.; Balsinha, Conceição; Fernandes, Alexandra; Machado, Ana Sá; Verdelho, Ana; Barahona-Corrêa, Bernardo

INTRODUCTION: People with dementia and their relatives should have timely access to formal care in the community. The EU-Actifcare project analysed access to and use of formal services, as related to unmet needs for care. We describe the cohort study implementation and baseline results in Portugal, with a focus on needs for care and service use assessments. MATERIAL AND METHODS: Our convenience sample consisted...


Needs and quality of life of people with middle-stage dementia and their family...

Kerpershoek, Liselot; de Vugt, Marjolein; Wolfs, Claire; Woods, Bob; Jelley, Hannah; Orrell, Martin; Stephan, Astrid; Bieber, Anja; Meyer, Gabriele

Funding: The project is supported through the following funding organizations under the aegis of JPND – www.jpnd.eu [grant number 733051001]. Germany, Ministry of Education and Research, Ireland, Health research board, Italy, Ministry of Health, the Netherlands, The Netherlands organization for Health Research and Development, Sweden, The Swedish Research Council for Health, Working Life and Welfare, Norway, Th...


Barriers and facilitators to the access to and use of formal dementia care

Stephan, Astrid; Bieber, Anja; Hopper, Louise; Joyce, Rachael; Irving, Kate; Zanetti, Orazio; Portolani, Elisa; Kerpershoek, Liselot; Verhey, Frans

This is an EU Joint Programme - Neurodegenerative Disease Research (JPND) project (http://www.jpnd.eu). The project is supported through the following national funding organisations under the aegis of JPND: Germany, Ministry of Education and Research; Ireland, Health research board; Italy, Ministry of Health; the Netherlands, The Netherlands organisation for Health Research and Development; Sweden, The Swedish ...


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