Induced hypothermia (IH) reduces the risk of death or cerebral palsy (CP) among term neonates with moderate-to-severe hypoxic-ischemic encephalopathy (HIE). It is now accepted as the standard of care. The aim of the study is intend to access if the severity of CP among survivors of HIE after IH is similar to their counterparts not submitted to IH or otherwise. Data from Portuguese Surveillance of Cerebral Palsy...
Introduction: Several factors can affect the composition of a mother’s milk, including the infant’s sex, gestational age, and single or twin delivery. We aimed to determine the association of the offspring’s sex with the macronutrient and energy content in preterm milk, during the first six weeks postpartum. Methods: This is a retrospective, monocentric, cohort study of lactating mothers who delivered before 37...
Background and Objectives: The Portuguese National Surveillance of Cerebral Palsy Program (PNSCPP) registers clinical, epidemiological and functional data of children with cerebral palsy(CP) at 5-8 year old, born in the 21 st century, The Surveillance of Cerebral Palsy in Europe (SCPE) recently published the classification of primary events contributing to postneonatal cerebral palsy (CEC-PNCP) in whose validat...
O Programa de Vigilância Nacional da Paralisia Cerebral em Portugal (PVNPC) produz e publica evidência científica que contribua para a prevenção da paralisia cerebral (PC) e para satisfazer as necessidades de saúde, educação e apoio social das pessoas que vivem com PC. Este relatório apresenta informação sobre fatores de risco para a ocorrência de PC, a caracterização funcional e doença associada à PC, e outros...
Background and Objectives: Attention was recently drawn to the association of congenital anomalies (CA) with severity and complexity of cerebral palsy (CP). Evidence of this association is presented. Participants-Methods: The Portuguese National Surveillance of Cerebral Palsy (PNSCP) registers data of 5-to-8-year-old children with CP, born since 2001. The PNSCP follows the Surveillance of Cerebral Palsy in Euro...
Introduction: Socioeconomic inequalities have been associated with the severity of cerebral palsy (CP). The European Deprivation Index (EDI) accounts for aggregated ecological effects not yet identified. We describe the association between complexity and etiology of CP and a proxy for socioeconomic inequalities in Portugal. Participants and Methods: The Portuguese National Surveillance of Cerebral Palsy (PNSCP)...
Chylothorax in the perinatal period may have congenital or acquired aetiologies. In premature infants, invasive procedures with thrombosis risk are common practice. We present a case of a 29-week gestation neonate, diagnosed on the 27th postnatal day with vegetation on the tip of the central venous catheter (CVC) and right auricle thrombosis, along with superior vena cava (SVC) syndrome, leading to significant ...
Aim: This paper introduces the Surveillance of Cerebral Palsy in Europe (SCPE) classification of events contributing to postneonatally acquired cerebral palsy, presents its interrater reliability, and describes the cases identified in the SCPE database. Method: The development of the classification, based on literature review and expert discussions, resulted in six main categories and 19 subcategories. The firs...
Background: In standard fortification of human milk (HM), the HM macronutrient content is assumed, and a fixed amount of a multinutrient fortifier is added to achieve recommended nutrient intakes. In target fortification, the HM macronutrient content is regularly measured, guiding the addition of modular macronutrient supplements to the fortified HM, to achieve the nutritional targets more precisely. Objective:...
Objective: To report the prevalence of cerebral palsy (CP) in children with severe congenital heart defects (sCHD) and the outcome/severity of the CP. Methods: Population-based, data linkage study between CP and congenital anomaly registers in Europe and Australia. The EUROCAT definition of severe CHD (sCHD) was used. Linked data from 4 regions in Europe and 2 in Australia were included. All children born in th...