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Factors associated with self-rated health in people with late-stage parkinson’s...
Pigott, Jennifer S.; Armstrong, Megan; Davies, Nathan; Davis, Daniel; Bloem, Bastiaan R.; Lorenzl, Stefan; Meissner, Wassilios G.; Odin, PerPurpose: To investigate the contributors to self-rated health in people with late-stage Parkinson's disease (PD) and cognitive impairment. Methods: A secondary analysis of baseline data from the international Care of Late-Stage Parkinsonism (CLaSP) cohort study was conducted. Participants with PD and either dementia or mild cognitive impairment or MMSE < 24/30 in the absence of major depression were included if...
Meaning in life in late-stage Parkinson’s disease: results from the care of lat...
Bublitz, Sarah K.; Brandstötter, Cornelia; Fegg, Martin; Ferreira, Joaquim J; Odin, Per; Bloem, Bastiaan R.; Meissner, Wassilios G.; Dodel, RichardThe Care of Late-Stage Parkinsonism (CLaSP) study is a longitudinal, multicentre, prospective cohort study to assess the needs and provision of care for people with late-stage Parkinson's disease and their caregivers in six European countries. As a cross-sectional study within the CLaSP study, 509 people with Parkinson's disease completed the "Schedule-for-Meaning-in-Life-Evaluation" (SMiLE) questionnaire. We c...
Access and attitudes toward palliative care among movement disorders clinicians
Miyasaki, Janis M.; Lim, Shen‐Yang; Chaudhuri, K. Ray; Antonini, Angelo; Piemonte, Maria; Richfield, Edward; Alburquerque Gonzalez, DanielaBackground: Neuropalliative care is an emerging field for those with neurodegenerative illnesses, but access to neuropalliative care remains limited. Objective: We sought to determine Movement Disorder Society (MDS) members' attitudes and access to palliative care. Methods: A quantitative and qualitative survey instrument was developed by the MDS Palliative Care Task Force and e-mailed to all members for comple...
The impact of COVID-19 on palliative care for people with Parkinson’s and respo...
Chaudhuri, K Ray; Rukavina, Katarina; McConvey, Victor; Antonini, Angelo; Lorenzl, Stefan; Bhidayasiri, Roongroj; Piemonte, Maria Elisa PimentelIntroduction: Although in some countries, palliative care (PC) still remains poorly implemented, its importance throughout the course of Parkinson's disease (PD) is increasingly being acknowledged. With an emergence of Severe Acute Respiratory Syndrome Coronavirus-2 (SARS-CoV-2) pandemic, growing emphasis has been placed on the palliative needs of people with Parkinson's (PwP), particularly elderly, frail, and ...
Factors associated with health‐related quality of life in late‐stage Parkinson'...
Rosqvist, Kristina; Odin, Per; Lorenzl, Stefan; Meissner, Wassilios G.; Bloem, Bastiaan R.; Ferreira, Joaquim J; Dodel, Richard; Schrag, AnetteBackground: There is limited knowledge on health-related quality of life (HRQoL) in late-stage Parkinson's disease (PD). Objective: To assess factors associated with HRQoL in patients with late-stage PD, with a focus on health care provision. Methods: The Care of Late Stage Parkinsonism (CLaSP) project is the largest study on late-stage PD to date. The current study analyzed data of 401 patients from 6 European...
Caregiver burden in late-stage Parkinsonism and its associations
Kalampokini, Stefanial; Hommel, Adrianus L. A. J.; Lorenzl, Stefan; Ferreira, Joaquim J; Meissner, Wassilios G.; Odin, Per; Bloem, Bastiaan R.Background: Patients in the late stages of parkinsonism are highly dependent on others in their self-care and activities of daily living. However, few studies have assessed the physical, psychological and social consequences of caring for a person with late-stage parkinsonism. Patients and methods: Five hundred and six patients and their caregivers from the Care of Late Stage Parkinsonism (CLaSP) study were inc...
The prevalence and determinants of neuropsychiatric symptoms in late‐stage Park...
Hommel, Adrianus L. A. J.; Meinders, Marjan J.; Lorenzl, Stefan; Dodel, Richard; Coelho, Miguel; Ferreira, Joaquim J; Laurens, BriceBackground: Late-stage parkinsonism and Parkinson's disease (PD) are insufficiently studied population. Although neuropsychiatric symptoms (eg, psychosis, depression, anxiety, behavioral problems) are frequently present, their prevalence and clinical predictors remain unknown. Objective: To determine the prevalence and predictors of neuropsychiatric symptoms in late-stage PD. Methods: We conducted a multination...