34 documents found, page 1 of 4
Concepts for the Development of Person-Centered, Digitally Enabled, Artificial ...
Bousquet, Jean; Schünemann, Holger; Sousa-Pinto, Bernardo; Zuberbier, Torsten; Togias, Alkis; Samoliński, Bolesław; Bedbrook, AnnaAbstract The traditional healthcare model is focused on diseases (medicine and natural science) and does not acknowledge patients' resources and abilities to be experts in their own lives based on their lived experiences. Improving healthcare safety, quality, and coordination, as well as quality of life, is an important aim in the care of patients with chronic conditions. Person-centered care needs to ensure th...
UCRAID (Ukrainian Citizen and refugee electronic support in Respiratory disease...
Bousquet, Jean; Samolinski, Boleslaw; Kaidashev, Igor; Maurer, Marcus; Roche, Nicolas; Sousa-Pinto, Bernardo; Kurchenko, Andrii; Stepanenko, RomanEight million Ukrainians have taken refuge in the European Union. Many have asthma and/or allergic rhinitis and/or urticaria, and around 100,000 may have a severe disease. Cultural and language barriers are a major obstacle to appropriate management. Two widely available mHealth apps, MASK-air® (Mobile Airways Sentinel NetworK) for the management of rhinitis and asthma and CRUSE® (Chronic Urticaria Self Evaluat...
Patient-centered digital biomarkers for allergic respiratory diseases and asthm...
Bousquet, Jean; Shamji, Mohamed H.; Anto, Josep M.; Schünemann, Holger J.; Canonica, G. Walter; Jutel, Marek; Del Giacco, Stefano; Zuberbier, TorstenBiomarkers for the diagnosis, treatment and follow-up of patients with rhinitis and/or asthma are urgently needed. Although some biologic biomarkers exist in specialist care for asthma, they cannot be largely used in primary care. There are no validated biomarkers in rhinitis or allergen immunotherapy (AIT) that can be used in clinical practice. The digital transformation of health and health care (including mH...
Consistent trajectories of rhinitis control and treatment in 16,177 weeks: The ...
Sousa-Pinto, Bernardo; Schünemann, Holger J.; Sá-Sousa, Ana; Vieira, Rafael José; Amaral, Rita; Anto, Josep M.; Klimek, Ludger; Czarlewski, WienczyslawaIntroduction: Data from mHealth apps can provide valuable information on rhinitis control and treatment patterns. However, in MASK-air ®, these data have only been analyzed cross-sectionally, without considering the changes of symptoms over time. We analyzed data from MASK-air ® longitudinally, clustering weeks according to reported rhinitis symptoms. Methods: We analyzed MASK-air ® data, assessing the weeks fo...
Development and validation of an electronic daily control score for asthma (e-D...
Sousa-Pinto, Bernardo; Jácome, Cristina; Pereira, Ana Margarida; Regateiro, Frederico S.; Almeida, Rute; Czarlewski, Wienczyslawa; Kulus, MarekBackground Validated questionnaires are used to assess asthma control over the past 1–4 weeks from reporting. However, they do not adequately capture asthma control in patients with fluctuating symptoms. Using the Mobile Airways Sentinel Network for airway diseases (MASK-air) app, we developed and validated an electronic daily asthma control score (e-DASTHMA). Methods We used MASK-air data (freely available to ...
Impairment of EQ-5D-5L Domains According to Allergic Rhinitis and Asthma Contro...
Sousa-Pinto, Bernardo; Louis, Gilles; Rodrigues, Jorge; Giuliano, Antonio Francesco Maria; Baiardini, Ilaria; Braido, Fulvio; Czarlewski, WienczyslawaEQ-5D-5L (EuroQOL, 5 Domains, 5 Levels) is a widely used health-related quality-of-life instrument, comprising 5 domains. However, it is not known how each domain is impacted by rhinitis or asthma control.; This study was partly funded by a grant from the University of Liège, Belgium. MASK-air has been supported by EU grants (POLLAR, EIT Health; Structural and Development Funds, Région Languedoc Roussillon and ...
Digitally-enabled, patient-centred care in rhinitis and asthma multimorbidity: ...
Bousquet, Jean; Anto, Josep M; Sousa-Pinto, Bernardo; Czarlewski, Wienczyslawa; Bedbrook, Anna; Haahtela, Tari; Klimek, Ludger; Pfaar, OliverMASK-air® , a validated mHealth app (Medical Device regulation Class IIa) has enabled large observational implementation studies in over 58,000 people with allergic rhinitis and/or asthma. It can help to address unmet patient needs in rhinitis and asthma care. MASK-air® is a Good Practice of DG Santé on digitally-enabled, patient-centred care. It is also a candidate Good Practice of OECD (Organisation for Econo...
Rhinitis associated with asthma is distinct from rhinitis alone: TARIA‐MeDALL h...
Bousquet, Jean; Melén, Erik; Haahtela, Tari; Koppelman, Gerard; Togias, Alkis; Valenta, Rudolf; Akdis, Cezmi; Czarlewski, Wienczyslawa; Rothenberg, MarcAsthma, rhinitis, and atopic dermatitis (AD) are interrelated clinical phenotypes that partly overlap in the human interactome. The concept of “one-airway-one-disease,” coined over 20 years ago, is a simplistic approach of the links between upper- and lower-airway allergic diseases. With new data, it is time to reassess the concept. This article reviews (i) the clinical observations that led to Allergic Rhiniti...
Digitally‐enabled, patient‐centred care in rhinitis and asthma multimorbidity: ...
Bousquet, Jean; Anto, Josep M.; Sousa-Pinto, Bernardo; Czarlewski, Wienczyslawa; Bedbrook, Anna; Haahtela, Tari; Klimek, Ludger; Pfaar, OliverMASK‐air®, a validated mHealth app (Medical Device regulationClass IIa) has enabled large observational implementation studies in over 58,000 people with allergic rhinitis and/or asthma. It can help to address unmet patient needs in rhinitis and asthma care. MASK‐air® is a Good Practice of DG Santé on digitally‐enabled, patient‐centred care. Itis also a candidate Good Practice ofOECD (Organisation for EconomicC...
Patient‐centered digital biomarkers for allergic respiratory diseases and asthm...
Bousquet, Jean; Shamji, Mohamed; Anto, Josep M.; Schünemann, Holger; Canonica, Giorgio Walter; Jutel, Marek; Del Giacco, Stafano; Zuberbier, TorstenBiomarkers for the diagnosis, treatment and follow-up of patients with rhinitis and/ or asthma are urgently needed. Although some biologic biomarkers exist in specialist care for asthma, they cannot be largely used in primary care. There are no validated biomarkers in rhinitis or allergen immunotherapy (AIT) that can be used in clinical practice. The digital transformation of health and health care (including m...