3 documents found, page 1 of 1
Addressing relationship quality of people with dementia and their family carers...
Marques, Maria J.; Woods, Bob; Jelley, Hannah; Kerpershoek, Liselot; Hopper, Louise; Irving, Kate; Bieber, Anja; Stephan, Astrid; Sköldunger, AndersObjective: The quality of the relationship between persons with dementia and family carers influences health and quality-of-life outcomes. Little is known regarding those at higher risk of experiencing a decline in relationship quality, who could potentially benefit the most from interventions. We aimed to identify these risk profiles and explore the underlying factors. Methods: We applied a latent profile anal...
Needs for Care, Service Use and Quality of Life in Dementia: 12-Month Follow-Up...
Gonçalves-Pereira, Manuel; Marques, Maria J.; F. Alves, Regina; Verdelho, Ana; Balsinha, Conceição; Alves, Luísa; Alves Reis, Teresa; Woods, BobIntroduction: The intermediate stages of dementia are relatively under-researched, including in Portugal. The Actifcare (ACcess to TImely Formal Care) EU-JPND project studied people with mild-moderate dementia, namely their needs, access to and use of community services (e.g., day centers, home support). In our baseline assessment of the Portuguese Actifcare cohort, the unmet needs of some participants would ca...
RHAPSODY – Internet-based support for caregivers of people with young onset dem...
Kurz, Alexander; Bakker, Christian; Böhm, Markus; Diehl-Schmid, Janine; Dubois, Bruno; Ferreira, Catarina; Gage, Heather; Graff, CarolineBackground: Young Onset Dementia (YOD), defined by first symptoms of cognitive or behavioral decline occurring before the age of 65 years, is relatively rare compared to dementia of later onset, but it is associated with diagnostic difficulty and heavy burden on affected individuals and their informal carers. Existing health and social care structures rarely meet the needs of YOD patients. Internet-based interv...