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Future policy and research for advance care planning in dementia: consensus rec...

Nakanishi, Miharu; Pereira, Sandra Martins; Van den Block, Lieve; Parker, Deborah; Harrison-Dening, Karen; Di Giulio, Paola; in der Schmitten, Jürgen

Advance care planning (ACP) is growing in importance in the global agenda for dementia care. The European Association for Palliative Care Taskforce (EAPC) on ACP in Dementia aimed to provide recommendations for policy initiatives and future research. We conducted a four-round Delphi study with a 33-country panel of 107 experts between September 2021 and June 2022 and approval by the EAPC Board. Consensus was ac...


Consensus definition of advance care planning in dementia: a 33-country Delphi ...

European Association for Palliative Care; Steen, Jenny T. van der; Nakanishi, Miharu; Van den Block, Lieve; Di Giulio, Paola; Gonella, Silvia

INTRODUCTION: Existing advance care planning (ACP) definitional frameworks apply to individuals with decision-making capacity. We aimed to conceptualize ACP for dementia in terms of its definition and issues that deserve particular attention. METHODS: Delphi study with phases: (A) adaptation of a generic ACP framework by a task force of the European Association for Palliative Care (EAPC); (B) four online survey...


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