Autor(es):
Gayoso, Maisa Vitória [UNESP] ; Domingues, Flávia Seullner [UNESP] ; França Junior, Marcondes Cavalcante ; Felgoise, Stephanie H. ; Oliveira, Acary Souza Bulle ; de Barros, Guilherme Antonio Moreira [UNESP]
Data: 2020
Identificador Persistente: http://hdl.handle.net/11449/201088
Origem: Oasisbr
Assunto(s): Amyotrophic lateral sclerosis; Quality of life; Surveys and questionnaires; Translating; Validation studies; Amyotrophic lateral sclerosis; Amyotrophic lateral sclerosis; Quality of life; Quality of life; Surveys and questionnaires; Surveys and questionnaires; Translating; Translating; Validation studies; Validation studies
Descrição
Made available in DSpace on 2020-12-12T02:23:45Z (GMT). No. of bitstreams: 0 Previous issue date: 2020-03-01
Coordenação de Aperfeiçoamento de Pessoal de Nível Superior (CAPES)
Fundação de Amparo à Pesquisa do Estado de São Paulo (FAPESP)
Objective: This study aims to produce and validate the version of the instrument Amyotrophic Lateral Sclerosis-Specific Quality of Life–Short Form (ALSSQOL-SF) into Portuguese, adapted to the Brazilian cultural context. Methodology: It is a cross-cultural adaptation and validation study, carried out in two Brazilian Public Universities, in the period from March, 2017, to November, 2018, according to the six steps guidelines of cultural and linguistic adaptation proposed by Beaton et al. (Spine 25(24):3186–3191, 2000). The World Health Organization Quality of Life (WHOQOL-BREF) and the Amyotrophic Lateral Sclerosis Functional Rating Scale Revised (ALSFRS-R) were used for perform the validation. In order to analyze the correlations between the ALSSQOL-SF, WHOQOL-BREF, and ALSFRS-R scores, Spearman’s correlation coefficients were calculated. The project was approved by the Research Ethics Committee of the two participating institutions. Result: All steps of the transcultural adaptation process were performed without intercurrence. The pilot test had the participation of 30 individuals, and the “Questionário Breve Específico de Qualidade de Vida para Pacientes com ELA (QVELA-20/Br)” tool was developed. During the validation phase, 100 patients were included, most of them were male (58%) with a median age of 59 years. The created version of the questionnaire are positively and strongly correlated with the WHOQOL-BREF and positively and weakly correlated with ALSFRS-R, as expected. Conclusion: The study produced and validated a version of the instrument ALSSQOL-SF into Portuguese that is adapted to the Brazilian cultural context.
Anesthesiology Department São Paulo State University (UNESP) Medical School, Av. Prof. Mário Rubens Guimarães Montenegro s/n
Neurology Department University of Campinas (UNICAMP) Medical School
Department of Clinical Psychology School of Professional & Applied Psychology
Department of Neurology and Neurosurgery Federal University of São Paulo (UNIFESP) São Paulo School of Medicine
Anesthesiology Department São Paulo State University (UNESP) Medical School, Av. Prof. Mário Rubens Guimarães Montenegro s/n
CAPES: 001
FAPESP: 2016/22437-0
