Author(s):
Monte, Maria Irisanny Kalliny Coelho ; Martins, Wanderson Alves ; Torres, Jackeline Bezerra ; Silva, Leonardo Alexandrino Da ; Tomé, Marcela Ariadne Braga Gomes ; Costa, Maria Isabelly Fernandes da ; Albuquerque, Francisca Andrea Marques de ; Frota, Mirna Albuquerque ; Gubert, Fabiane do Amaral ; Marques, Marilia Braga ; Coutinho, Janaina Fonseca Victor ; Martins, Mariana Cavalcante ; Nogueira, Paula Sacha Frota ; Pinheiro, Patricia Neyva Costa ; Beserra, Eveline Pinheiro ; Vasconcelos, Viviane Mamede
Date: 2017
Origin: Oasisbr
Subject(s): Transtorno Autístico; Autistic Disorder; Qualidade de Vida
Description
Introduction: the infantile autism is a developmental disorder that affects social interaction, language, cognition and quality of life. Objective: describing the parents’ perception about daily care for autistic children. Methods: it was a descriptive and qualitative study performed with parents of autistic children attending a reference health center in a Brazilian city. A semi-structured interview was used to collect data. The participants gave information about their socioeconomic status, daily care activities, hope and social interaction. Results: based on the speeches of the participants, the following categories were described: negative feelings about the disorder; the (in)dependent autistic children and future perspectives for them; family acceptance of autism, which required appropriated changes in the family environment. Conclusion: analyzing the parents’ perception of autism is essential because it enables the multidisciplinary group of health professionals to establish adequate and specific health interventions.
