Author(s):
Alvarenga, Willyane Andrade de ; Nascimento, Lucila Castanheira ; Santos, Claudia Benedita dos ; Leite, Ana Carolina Andrade Biaggi ; Mühlan, Holger ; Schmidt, Silke ; Bullinger, Monika ; Carvalho, Emília Campos de ; Bredle, Jason ; Arnold, Benjamin ; Coelho, Robson de Castro ; Vieira, Margarida
Date: 2019
Persistent ID: http://hdl.handle.net/10400.14/28167
Origin: Veritati - Repositório Institucional da Universidade Católica Portuguesa
Subject(s): Validation studies; Psychometrics; Adolescents; Parents; Proxy; Spirituality; Spiritual well-being
Description
Spiritual well-being is a major issue in health care, but instruments for measuring this construct in adolescents are lacking. This study adapted the 12-item Functional Assessment of Chronic Illness Therapy-Spiritual Well-being Scale (FACIT-Sp-12) for use with Brazilian adolescents with chronic diseases and developed a parental observer-rated version, using an expert panel, back-translation, and cognitive interviews with 72 participants. The psychometric properties of both versions were verified with two- and three-factor models by testing with 212 participants. The self- and parental-reported versions showed face validity, content validity, and acceptable levels of internal consistency for the overall scale and the two-factor model. The convergent validity was satisfactory for most items in both two- and three-factor models, but there was a lack of discrimination in the three-factor model using multitrait–multimethod analysis. This study presents the first instrument to assess the spiritual well-being of adolescents from their point of view and to allow their parents to serve as evaluators. However, we recommend further psychometric testing of the self- and parental-report scales to assess spiritual well-being in adolescents with chronic diseases in Brazil.
